Body Image and ED-From an autistic perspective

Last night I participated in a Twitter chat about eating disorders, body image issues, and how they affect me as an autistic woman. I didn't find Twitter to be as accommodating to my long winded style of writing as I'd have liked. I thought that maybe it might be a good idea to do a blog entry on this topic, as it does seem to be a popular one that needs addressed.

After the chat I had so many thoughts swirling around in my brain. I am not sure how to organize them here to share without this entry turning into a small novel! The questions, and answers brought forth memories long forgotten. There is something about looking back on certain things in one's life as an older adult, and having a different POV, and appreciation of things that only time, and maturity can facilitate. Some things shifted into place, while others still remain tangled within my odd personality of contradictions.

As a young child I do recall not having a very positive relationship with food. How much this contributed to my body image issues, I don't know. I know it didn't help. I was always a very thin, underweight kid. There were always more interesting things for me to do than eat. I don't think I find the same enjoyment out of eating as other people do. Most of the time I would eat just enough to make the annoying hungry feeling go away, but not enough to be very full.

I had a certain way I would eat, as well. Things on my plate could not be touching, and certain textures were not okay with me. I would eat only one thing on my plate at a time.

I don't think I can stress this enough to any, and all parents

Thoughts for 2017

In one of my recent posts I posed a few questions to get me (and hopefully all of you) thinking about the things I'd like to bring into this year, and where my mindset is in relation to my goals. I wanted to have this post done before January 1st, which is funny to me, since it's now January 22nd. Sooooo, as you can tell, my new year is busy. It's okay, though. It happens.

Let's dive in with the questions.

What has gone right/well this year? How do you plan to keep facilitating this into next year?


For me I would say that my relationship with my husband has improved, and he has been helping out around the house, and with the kids so much more. I would facilitate this by encouraging him, and making sure he knows I appreciate him, which are not my strengths, so that will take some work on my part to remember.


What has not gone as well as you'd hoped, and how do you plan to cope/change with it this next year?

If I Don't speak Up Who Will?

Recently I was browsing through some Facebook posts, and I stumbled across one in particular. I don't recall the exact name of the page, but I do remember that it was about children with special needs. Within the post the administrator of the page told a story about something that had happened to her at work that day. The scene depicted was one of a developmentally delayed young adult fighting with her mother, and the mother using rather harsh words to the daughter. It was portrayed in the light of equality between the two relationships, and even further that the behavior from the mother was out of frustration. Perhaps, they needed a break from each other, was the final word from the post author.

I read through the comments, and my heart began to race faster with a feeling of anger, and disbelief. The majority were so negative from the perspective of the parents. I couldn't believe that some read the same exact passage as I just did, and came away with not only a feeling that the mother's words were okay, but that they were absolutely justified.

Then there was that one. If you're like me, and let most ugly things go, until there's that one comment that just pushes you over the edge straight into a rant about how effed up that person's post is, then you know what I'm talking about. It was

Knock Knock...This is #Anxiety - it's an emergency! Let me in!

I often write about expanding my own horizons, and testing my boundaries. Recently, I have written about not caring so much what people think, or if I get feedback from others that seems to support my choices. Then, as luck would have it, or probably not really luck if I am honest with myself, but rather just the way my neurology operates, I am hit with a bout of acute anxiety.

The day before yesterday I got a haircut. It wasn't much different, and I felt okay, and comfortable about it. I was feeling overwhelmed in general that day, but nothing that would rise to my attention as noteworthy. I posted a picture of my new do on Facebook. Then, my husband came home, and seemed not to even notice, or give much thought to my new haircut even after I asked about it. This made me feel really anxious. I began to fret. I immediately felt like i should not have posted a picture of it, and I deleted it from my timeline. Anxious thoughts filled my brain from thinking that I was wrong to make a big deal out of something so small as a haircut to feeling like maybe it didn't look very good. "Just who do you think you are to feel like anyone wants to even be bothered with something so minute as seeing your haircut?" That was one of my main thoughts Which spiraled into feeling like a fake for feeling this way, but always promoting healthier thinking. How in the world can I talk about something with any kind of authority if I can't even do it? Oh, my.... I think I'm a fraud. I think I am ugly, and probably fat, and maybe a bad person, too.

Then, I paused. Literally. I hit pause on my brain, my thoughts stuttered to a halt as did my whole body.

"Hello depression." I said to myself. "I see you are sneaking in behind your buddy anxiety."

I recognized all the the bad thoughts that lie to me until I am living in a shadow of who I am as a symptom of depression. They convince me that I am not worthy, and when they sneak in behind thoughts of fear I am so vulnerable that I believe them.

Not this time.

Finding Happiness

I have different writing styles, as well as differing reasons that I blog. I have always been a writer, and there is still something so magnetic, and alluring about an empty notepad of paper that I can't hardly resist filling it with words. Words of a poem, of my thoughts, of lyrics to something that makes sense to me in that moment. Just words flowing onto an outside object from inside my head is a desire that I can't ignore. It's my way of communicating to the world, and to myself. I process the world by writing, and have ever since I learned to spell.  No matter my special interest at any given time writing is how I am going to best explore it, and share it with the world, whether anyone is on the receiving end or not.

So, this is one of those posts where I talk to myself, and share my thoughts raw. They're about as mysterious to me as unknown to you. I finally have the confidence to not worry so much about whether or not anyone is going to read it, or if this post is going to be shared, or receive comments. It likely won't, but I don't write to please others. I write because I have to express myself, and this is how I do it. How others interpret this expression is up to them, and while I love to get feedback it is not necessary for me to get in order to enjoy the process of writing.

As I have written about recently (HERE) I have begun a new round of antidepressants after a particularly trying bout of depression. It was not your typical gray depression, but rather it was a life changing kind that required action. Not just action from an outside source, such as an antidepressant, but also action in changing my life, and the way I think to be able to sustain a more positive lifestyle conducive to me needs. I'm not going to repeat everything here that I have said in so many other posts, but to paraphrase; depression is often a signal from our subconscious that something in our lifestyle, and way of being is not congruent with our needs. This is not the whole of depression, but it is often at the root.

Almost immediately after beginning my new medication I could feel a difference. It's a med that I have been on before, and have found it to be really effective for me, even though it seems to not agree with a lot of other people. It was as if it were made just for me. Suddenly, I felt a surge of energy, and a renewed sense of purpose. There were so many things I wanted to do, and experience. It was like waking up from a long sleep where I could finally do the things I could only dream of before. Suddenly, my dreams could be a reality. Life became clear again, and not this long drawn out painful, confusing fog that I had to fight to just survive through each day.

Aspects of my personality began coming back that I hadn't seen in years. Things like

I'm Too Old For....

Today is my birthday. This last week I have been thinking back on my life, and how things are. I have a hard time believing that I am 36. It doesn't feel possible. When I was younger I always felt so mature for my age, but now as I age I feel my internal clock is moving in reverse. I feel like I am still in my twenties, and the 90's were just 10 years ago.

I was thinking about the things I like about my life, and the winding path that has taken me to where I am. I was also thinking about the things I am tired of, and done with. Things that I said I wanted to change a long time ago, but realized I never bothered with.  I began to compile a mental list in my mind about these things. Things I felt I was too old for, or done with.

I'm too old to keep being the victim. I know this one seems to be a bit strange to say, but hear me out. We've all had bad things happen to us. A lot of the things that happen to us when young is not our fault. We have no say in what kind of family we're born into. We have no say over a lot of the most painful of life's circumstances. They happen to us no matter who we are. We're all going to experience the loss of a loved one at some point in our lives, for example. However, there are so many things we do have control over. These are the situations that I am talking about when I say that I am too old to keep playing the part of the victim. I think what often happens is that many of us that came from dysfunctional families where we were not accepted, or cared for tend to subconsciously seek that pattern in other relationships. This is not to say that we want to keep feeling bad, but we are used to it. It's comfortable. It's the role we know, so we play it. I know this has been the case for me. I don't like being rejected, or never having my needs considered by others, yet it keeps happening in so many of my relationships. Somehow, I keep seeking this role out, hating it all the way.

I'm done with it.

I need to actively seek to better my life, and not blame others for my own problems. If I don't have enough help, or enough affection, or enough anything I need to problem solve on how to resolve this. I can't keep just expecting others to meet my needs without me being active in putting the process in place.

With that being said.....

I'm too old to be giving myself away. This one goes with the victim role I was talking about above.  I'm getting too old to keep getting into the role of people pleaser. I am getting too old to waste time on people that are only there to take advantage of me. I can't keep being taken by the same type of people, and expect my life to not feel drained.

Being Me

One major change that I have been working on in my life is not caring what others think of me. It is not true that people on the spectrum don't care what other people think about us. I do care, and I know others that do, too. What I don't care about is impressing people with status symbols, like clothes, cars, and a big nice house, ect..

However, I very much care if someone thinks I am annoying, stupid, ugly, a bad mom, or a host of other negative personal attributes. Not knowing always how to read people, and how to gauge situations I have learned to cope by playing it safe, and not saying, or doing anything until I am 100% certain it is appropriate to the situation.

I have stopped doing that. Now, if I feel like saying or doing something I do it. I worry that others' will think less of me for doing so, but the truth is I have to be me. I am tired of painting myself in the corner just to blend in. I'm going to do what I want for a change.

Sure, maybe not everyone will like what I do, or say, but that's fine. One of the hardest lessons I ever had to learn (and to be honest I am still learning it) is that not everyone is going to like me, and I am not always going to like everyone else. It's the way it is. We're not all always going to get along.

What I have found so far is that the less I consume my mind with wondering what others are thinking of me the less I think negative things about others. I simply notice the differences between us, and that's all. I am taking things much less personal these days. It's true that people are still doing the same things that always have gotten under my skin, but it affects me less.

This new outlook has improved my life

The Autistic Student- Won't vs. Can't

It seems pretty common to hear parents of ASD children talk about a time when someone told them that their child can't or won't be able to do this, or learn that.  I come across stories like that all the time. As wrong as I think that is, that has been rarely my experience with my kids, or even myself. As a matter of fact, it's been the opposite.

I don't know how many IEP meetings that have been called by me to discuss services for Bubby. No one has ever said "He can't do it." It's always been "He can if he tried."

What If I Can?- letting go of the belief that I am limited

There are events that occur in our lives that change our path to something radically different in just a few minutes, or hours.  Last month, one of those life changing events happened to my family.

When Beans came home from school hurt on the 10th of last month my journey as a mother took a sharp turn.  I pulled everything to a halt, as I searched for answers as to what happened, and what I can do to help Beans get the education he has a right to receive.  I didn't count on the odds being stacked against us. I didn't anticipate so much hostility from the people that are supposed to educate my child, and have his best interests at heart. The shocking amount of covering up for each other, and adversarial nature of all involved was a life lesson I wish I never got.

As my biggest fears were realized in this situation I realized something else. I realized that my biggest, most tallest fear was that I was incapable. The way in which I underestimated who I am, and what I can do is by far my biggest weakness, and my biggest fear producer.

I realized that in this moment of adversity I could fight it, and get stuck on the part where we are the victim, or I could move forward on this path that I have been suddenly thrust upon.  I began to see the new situation, and the new found path as a journey full of opportunity, borne of unfortunate circumstance.

I Found My Courage

After some silent time of contemplation, I am back. 

During that time I thought about what is happening in my life right now, and what it means. The simple fact is, I am a natural born writer, and thinker, but not one that likes spotlights, and controversy.  I like to share, but from a quiet corner. I know that many of have urged me to go to the media with this latest awful situation with Beans, but I have to say that is my last resort, because it is so far out there in my comfort zone that I would literally have to left with no other options, besides defeat. To be honest, I'd almost rather accept defeat than to be on TV talking about such a high conflict situation that is going to bring fire down onto my family.

I don't handle high conflict situations well. What else that I don't handle well is situations where there is a very serious social injustice.  So, I feel that in this case, I am dealing with it whether I want to or not. It's on my doorstep, and isn't going anywhere.I can buck up, and stand my ground, or cower. The consequences for standing up will be harsh. I will be subjected to scrutiny, and I will lose friends, and alliances. Making noise, and being the proverbial whistle blower is not an easy task to carry through.

I thought about all these things the last couple days. I gathered up all of my strength to make the decision to carry on. I have made note of the close friends, and family I thought I had that have not been supportive. I make no apologies to the people that want to get their panties in a bunch when I don't take their advice, or ask them politely not to do something on my personal facebook page. They want to think of only themselves, then that is their right to be selfish, and petty. Fuck them. I won't let them bring me down any longer.

So, I am back. Rested, and ready to go forward, even in the face of adversity. I have to stand up for what is right for Beans, and for all the other kids that this situation has, or will have happened to.


"Human progress is neither automatic nor inevitable... Every step toward the goal of justice requires sacrifice, suffering, and struggle; the tireless exertions and passionate concern of dedicated individuals.
Martin Luther King, Jr."

Off the Cuff, and From the Heart

As I sit here on my couch, and contemplate my day it's about 10:30 pm. I hear Beans running around his room tapping his an empty water bottle, and exclaiming "Daaaa daaaay deeee!" My husband slumbers half off our sectional couch so exhausted that our 55 pound dog just ran over his head several times chasing the cat without waking him. My daughter, and her boyfriend sit in the other room talking, and the floor is littered with grapes, and cracker crumbs. I still will have to clean up the kitchen, and put away laundry before bed, but that's okay, because Beans is not likely to go to sleep before 11:30 anyway. This scenario is not atypical for my house at this time of day. As a matter of fact, it's pretty on schedule for what I expect.

Today wasn't anything great. It's wasn't anything awful. It was just another day. I got some stuff done, but not all of what I wanted, or even needed to. I think that I will never have my list of to-do's completed. I could very well be 98, on my death bed still clutching my to-do list. I can see it now

Dreaming Of The Past, and Looking Forward To The Future

I am one of those people that have vivid dreams that are colorful, lifelike, and so full of emotion.  I have
written about my dreams before on this blog. At first, I was hesitant, but then I am thinking...how could I leave off such a vibrant part of my mind?  How can I write about my experiences while leaving behind a big part of me?  My dream state sometimes is so real that I can't hardly tell the difference between awake, and a dream.  I don't know if this is due to my Asperger's that my brain is wired to express itself in such amazing description inside of my imagination while I sleep.  I don't know if it may be because my emotive state is so stifled while I am awake that it must express itself while I am unconscious.  It could be any of those things, but I do believe that having different way of thinking is a huge contribution to dreaming with such voracity.

Conversations With Bubby: You Don't Look Like You Have Asperger's

Conversation this morning with Bubby:

Bubby: Why do you always do work on autism, and asperger's?

Me: Because, it's what I am interested in.

Bubby: Is it because you have Asperger's?

Me: Yes, but it's also because it's what I like to do, and learn about. Just like how like Minecraft, and Family Guy.

Bubby: And South Park!  You don't look like you have Asperger's.

The Ultimate Self Accpetance Test

Yesterday, I saw this image:

 I posted it on my FB page and to my surprise a few people responded with reservation, or flat out 'No' to the question in the image.  I'm unsure of what to make of that.  If you follow my blog you will have seen that I struggle with depression and it's side kick low self-esteem.  It's something that has plagued me for as long as I can remember.  However, I can say with certainty that I think that I am a good person. A person that is worthy of friendship and love.  I think of the qualities that I think make a good companion:

*Honesty
*Kindness
*Loyalty
*Reserved (at least not overly loud and boisterous)
*Understanding of other's struggles-even if they are foreign to yourself
*Unique
*Assertive
*Generous
*Practical
*Down to earth
*Tenacious   
*Dedicated
*Reliable
*Strong work ethic
Just to name a few. I think that I embody those. I actually spend a lot of time thinking about how I come across to others and whether I am putting an image out there that I can be proud of. I try to be a person that if I met myself I would want to be friends with.  This is the ultimate in self-acceptance. If you can't be friends with yourself, if you can't like yourself, or hold your actions in the light of esteem, than how can others? Why would you not want to be friends with yourself?  If there are specific reasons, those can be changed once you identify them. If you just feel uncomfortable with the idea, then it's time for some deep soul searching. We have to be comfortable with who we are to be truly fulfilled. That is just a given. If we can't be comfortable with our inner self, we can never be fully grounded.  We risk spending a life running away from our shadow, fearing alone time. 

What qualities do you think makes a good companion? Do you feel that you posses them?

Mindfulness Day- 18?- The Lies My Ego Tells Me

So, here we are on Mindfulness day 18, I think it is? I've lost count of what day it is and as I predicted I am too busy to blog often about it.  I'd love to be able to, but life gets in the way.

In these last couple weeks I have noticed something.  It's been there causing trouble this whole time, but I had been unaware of it.  As I am being more compassionate with myself and letting go of perfection thinking I have become aware of some negative thought patterns that were lurking just beneath the surface.  They required my belief to be strong that I was indeed not good at anything and less worthy than others.  They thrived off this mindset.  As I let go of these thoughts that I held as absolute truths these other negative behaviors showed themselves.  These beliefs were that since I held myself in such a negative light and saw this as nothing but the truth, then others do as well.

I approached every sentence, every action and every facial expression from other people to be somewhat malicious.  It was just an assumption that since I thought I was such an awful person others must, as well.  I felt like I was defending myself in every conversation and being on the look out for being the victim.  Something so simple as my husband asking me if I had checked the mail today when he arrived home from work could be interpreted by me as negative.  My thoughts could go something like this:
"What does he mean?" I'd pause and look for any clue that he was irritated or mad in his face.
"I should have checked the mail."
"He probably thinks I'm lazy"
"He's out at work all day and I can't even check the mail."
"I really shouldn't spend so much time _______ or ______-."
"He could probably find someone else that would do better than me."
Then, sometimes (not always) from there I will get defensive, as if he actually said these things. Then, my thoughts go from self loathing to defensiveness. I begin to think things like:
"Well, he doesn't know how hard it is to keep this house up!"
"I'd like to see him find someone who will do it better!"
From here my mood can go to any direction that's negative. I might get angry and resentful and begin to speak to my husband as if he actually said these things.  I might get depressed and whiny, or perhaps go straight for the anorexic route, where I decide I need to restrict my food, because somehow, that will fix this.

It doesn't matter which way I might go with it, because they all end up in a destination of misery.  They all start with my belief that I'm not okay. That I am defective and others know it, too.  Some of this isn't just me being irrational, because I know that as a child growing up in a dysfunctional home where I was always the scapegoat everyone really did believe that I was unworthy. There was a lot of insults and mind games that were hidden in between the lines.  This isn't really just a product of an overactive imagination.  This is the result of years of self preservation.  The issue is, is that the patterns we learn in dysfunctional families only work in that dysfunctional unit.  Everywhere else we apply them, they are a disaster!

This is a major step in freeing myself up from the cycle of negative thoughts and behaviors.  Having this revelation has enabled me to be able to question the authenticity of my assumptions that I previously held as facts, without question.  Now, I can approach life from a different angle and in doing this, get different results. I can choose to view others actions and words through a lens of positivity and kindness, assuming the best of intentions. Of course, this doesn't always mean that others do have good intentions, but I'll let them carry their own hate and negativity around.  I don't want it.  I'd rather keep my head up and move forward, instead of getting stuck in drama of what others think.  There are more important things in life to worry about than if so and so thinks this or that about me and what I'm going to do to show them they're wrong.  My ego doesn't get to call driver's seat anymore. I don't like where it takes me.

Mindful Thinking-Sensory Awareness Day-4

In continuing with my efforts to blog more consistently about my new ideas of  mindful thinking and what strategies I'm applying to better meet my goals I'm happy to update that today is going okay, as well as yesterday.  The day before was pretty unhappy and unfocused.  Filled with lots of anxiety and negative thinking.  I still have so much work to do in determining triggers and not allowing them to be my primary focus, sending me into a tailspin of fret, worry and all sorts of negative thinking patterns that I would rather not waste my energy on.

Today, I was successful in identifying when I was being overzealous in my attempts to plan out my weekend.  I had this fantasy that since it was Mother's Day weekend I would somehow (don't ask me how) get the whole house sparkling clean and have time for some blogging and extra baking.  I thought that I might be able to get weeks worth of tasks miraculously done in two days.  By about 3 this afternoon I became aware of my illogical thinking.  My irrational goal was exposed for the life-sucker it has proved itself to be for the last 30 some years.  I told that thought that I couldn't listen to it.  I acknowledged it's existence, noticed it was there, thought about how nice it might be to have Monday (my day off I designated for myself, but more about that later) in a nice, orderly house.  Alas, this wasn't my life and the only way I would come close to this goal would be if I manically cleaned, and got on everyone else's case to do the same awarding me the most unpleasant mom to be around this Mother's Day weekend.  Now, I did not want that award.  That is probably the opposite of what I want, so I decided that it was best for me to do what I can and let it go.

As I am trying to be more aware of my feelings, where they originate at in my body, what triggered them, how I react, how they effect me, ect.. I have noticed a great deal of frustration buried deep in my stomach today.My sensory system is overloaded without provocation.  This happens from time to time, without so much as a warning or a reason.  I just have days where nothing feels right.  My clothes feel all wrong, my appetite is out of whack, I feel achey, irritated, and unable to tolerate noise.  Any noise and it just so happens that my house consists of noise coming from competing directions at any given time.  TV, video games, computers, Bean's toys and verbal stims.  My house is anything but quiet.    My husband isn't feeling well and when he feels unwell he wants cuddles.  Lots and lots of cuddles. This is not always my favorite activity unless it's at the designated times, but I do not like my routine interrupted with lots of hugs and kisses(unless you're Beans.  Beans always gets hugs and kisses!).  I'm trying to get things done.  My sensory system is hanging on by a thread of imminent meltdown and he needs hugs.  Denying him this (which is excruciatingly important to him) at this time is not going to turn out well, so I am dealing with it.  Maybe, I am getting sick as well and that's why I am feeling over my sensory limit from the get-go?  Who knows?

Mindful Thinking-Anxiety Day 1

Today, I am still actively aware and working on my need for obsessing, and attempts at perfection.

My first thoughts this morning was a loooong list of important 'to-do's' which left me feeling overwhelmed and panicky. I decided to take one small task at a time and not worry about the whole day and minor tasks.  I want to be calm and feel optimistic, but reeling in stress about daily tasks is not achieving that.  I decided that I value being calm and optimistic more than I value having a clean house, all my errands ran, and exercises done. I realized that I could do some of those things without going to the extreme of all or nothing, black and white thinking that usually plagues me and hold my emotions hostage as I get more and more panicky trying to achieve it all.

I am still feeling anxious about possibly not getting everything done that I'd like to.  I'm still feeling anxious about posting this.  Feeling uncomfortable is okay. Discomfort is my body's way of letting me know that I am testing new waters.  That's a good thing, because without discomfort my life will never grow.  You can't get different results by doing the same things, so I am going to keep it up.  I think this is something that is difficult for many on the autism spectrum.  We see the world in such detail that we want everything to be 'just right'.  Combining that with our tendency to be black and white rigid thinkers an, and it's a sure way to a path of anxiety and depression.  I will continue to post daily or every other day on how I'm changing my old habits into new, more productive ones that align much better with the things in life that I value.  Every minute of everyday offers up opportunities to change that one thought, that one action,that one word to be more reflective of a life that I choose.  I choose confidence, self esteem, family, love, kindness over self-defeat, sadness, isolation and frustration.  It's my life and I need to take responsibility to make these things manifest.

So, today my goal is to not worry about getting everything done, staying vigilant in getting what I need to done (means not over-thinking or spending time I don't have on FB and Twitter! lol) and feeling good in knowing that I'm doing what I love, no matter what else happens, or what others may think.

Breaking the Habit of Perfection Thinking

The other day on my facebook page I said that I was going to work on holding myself to such a high standard of perfection.I tend to hold myself to such a high standard that it's like a constant pressure.  You know that feeling when you have a really important project approaching due,date? One that is challenging, and is crucial that it's done well and on time?   That's how I live my life, everyday with everything that I do.  

I think that I've made a few other posts on here about being more mindful about time, and how my thoughts get carried away, but I seem to forget.  It's like a good habit that you want to pick up, that you fully intend to incorporate into your day, but somehow it slips away bit by bit, until you don't even realize that you're not keeping up with it at all anymore. I think that I need to work on little chunks at a time to be more successful.  Like, instead of just telling myself that I'll be more compassionate with myself, I need to list specific examples.  I think that if I continue to involve the daily habit of slowing down my thinking and being easier on myself my world would be infinitely happier.  There would be less depression, less anger, less frustration, less anxiety and less meltdowns.

I'm thinking that I might write them down.  Maybe put them here, or on my facebook page?  Maybe just leave them in a notebook for me to see?  The biggest thing is for me to write down the thoughts that come into my head that may be contributing to my feelings of depression and anxiety. Once that I get them on paper, I can see them as their own, without they being apart of me.  That moment of separation is key, because when we think something that triggers an emotional reaction, often we are already in the reacting phase without even thinking about whether our thought is true and where it fits in the direction we want our day to go in.

For example, yesterday I had a doctor's appointment. I was terribly restless about being weighed. I was terrified that the doctor would think that I was fat, or say something bad about my appearance.  So, I guess I could write it down like this:
Thought: I'm fat.  The doctor is going to tell me to diet or the nurse is going to think badly of me for my weight.
What would happen if that actually were true?: I'd feel ashamed of myself for being sub par.
How would this thought and subsequent feeling shape your mood and actions?  I'd begin to feel sad, depressed and paranoid that everyone else thought this, too.  I might begin to resentfully eat less and exercise more. I might even avoid some social situations due to feeling inadequate.
Is this how you want to live?  Is this living the life you value and does these thoughts and subsequent actions push you in the direction of your goals and values?: No.  I don't value being depressed and sad.  I don't want to avoid people, because of my anxieties.  I value being a happy mother and wife and to be the best person I can be.
What thought can you replace it with that might be better in tuned to your personal goals?:  I'm not fat. I don't know what the doctor thinks.  I'll have to wait and see what happens and what she says to do. There's no use in making up the scenario in my head now and getting upset over something that may never be.  I am going to move my energy into something that matters more to me than this.

Also, in some cases I may be able to add something about past experiences to help me move through unwanted thoughts.  In this case, my doctor told me to stop losing weight and not to over-exercise.  The nurse even said that I was super small, so this time it was an irrational thought to begin with.  The next time a weight related anxiety comes up I can try to use this experience as a reference to what thoughts might be better due to the unanimous opinion that this one (while very real and powerful to me) is irrational.

Of course this was just a small taste of the OCD fueled irrational, and anxious thoughts that go through my head on a daily basis making me nervous and feeling so deflated by the end of the day.  This would probably not be this way if I'd been raised more compassionately, but nothing I can do about that now.  I can't change the past, even if what it left me with is unfair.  I can only change how I am and how I deal with things. So, I'm hoping that with some effort things will improve and if you're struggling with a similar problem that things will improve for you, too.

Inner Aspie to "I Wish I Didn't Have Aspergers" - An AutismPositivity2012 Flash Blog Event

Dear 'I Wish I Didn't Have Asperger's'


When I think of that statement I think about the times when I, myself, thought it.  My mind skips back years in time where my own journey wasn't always easy.  Those times, are hard to think of now.  I still have those times now where I think, just for a moment, that I wish I didn't have Asperger's. This letter may well be for me to reflect on during those moments as much as for others out in cyberpsace looking for some consolation.  This letter may be for my son, when he gets a little older and thinks 'I wish I didn't have autism' during his moments of inevitable struggle.

What would I like to say to the child that I once was and to other autistic children out there right now?  I'd like to remind them that the things that seem to huge now won't be in a few years.  I wish I'd known that when I was alone at recess, or picked last at PE everyday.  I'd tell them that it's okay to be an individual and pursue your own interests, instead of worrying if the other kids will approve.  I'd tell them, you will find a friend, a good one.  Just be patient. Do not accept 'friends' that treat you less than in order to have a friend. I'd say, you are good enough, just as you are. Repeat that to yourself until you know it to be true.  This will be the one thing, if any that I would make sure that I as a child would have known.  I am good enough just as I am.  People that are worthwhile will respect me as a person, autism and all.

What would I say to that awkward adolescent that I once was, and to the other autistic adolescents out there?  I'd tell them to just hold on.  I know it's hard right now. Being a teenager is hard for everyone, but even harder for us on the spectrum. I'd tell them that they'll get a chance to date and find love.  I know it can be lonely.  I know everyone else is telling you to be patient and the right one will come along.  I know you're tired of that cliche.  I know these words won't stop you from feeling lonely, but please let them soothe you some into knowing that it will happen.  It may not be tomorrow. It may not be next week, but please know that you will not be lonely forever.  If I had a way to tell my former teenaged self something, I'd have told myself to keep busy doing what I like, being confident with myself and the dates and friends would come naturally.  Fretting, obsessing and constantly trying to problem solve will make relationships harder to come by and quite possibly prevent them from happening in the first place.  Getting a boyfriend or friends is not like a math problem or crossword puzzle.  It can't be solved by intellectual thought.  It has to go through the natural stages to evolve.   I'd tell myself that I need to learn about meditation and find a good therapist to help me learn about emotions. I'd tell autistic teens that what others think don't matter as much as what you think of yourself.  Pay attention to keeping things in order on the inside and things on the outside will be much smoother.  Learn how to detect and handle your emotions.  This is not something that is firsthand for us.  It needs to be learned and is crucial to success.

I'd tell teens to take advantage of the internet.  The amount of support available is endless. Find other ASD teen to chat with.  Find ASD adults to mentor you.  We are here.  We've been where you are and understand.  We can help guide you and are more than happy to do so.  Don't post on Facebook or constantly tell your peers that you're lonely ect... This will have the opposite effect you are hoping for.  Find some online support group to confide in.

For young autistic adults, I'd tell them most of all, that it's okay to ask for help.  It's okay to not know things.  There is no shame in needing assistance.  Don't try to do everything on your own to prove that you can and to prove you're independent!  It takes a strong person to ask for help when they need it.  Don't drive yourself into the ground with anxiety and depression by trying to do it on your own.  Find support from somewhere.  Sometimes, with some of us, it won't be family.  We'll have to find it somewhere else.  Take advantage of disability services when and if you need them. 

What I would want any autistic person to know, is that being autistic is okay. Don't waste a minute of your life hiding away who you are trying to be someone you're not.  Do what you love, and love what you do. This will help instill pride.  Immerse yourself into positive actions and let that direct you to self worth.  Don't ever let the bullies in your life win by repeating their stories in your head through the years.  If you can't shut the stories off, get to therapy to help you.  Know, I mean really know that you have worth just as you are.  Be authentic.  Be compassionate with yourself.  You are going to have bad days.  You are going to have sensory issues and meltdowns.  Again, learn your body and emotions. It will give you a better opportunity to handle these things when they come up.  Be compassionate and forgiving with yourself when these things happen. Remember:  " I am good enough just as I am.  People that are worthwhile will respect me as a person, autism and all ." That is your new mantra.  The world can be noisy and overwhelming. Sometimes, you might feel like it's all too much, or your heart literally aches with loneliness.  Please, remember that there's many of us that share your story or care very much.  We have autism, too, or children that are autistic, or friends, and family.  You're not alone. Reach out to us.  We're here.

Invisible Me Visits From The Past

Some of you may have noticed that yesterday I remarked that I had had a bad day on my FB page due to letting others under my skin, again.  I didn't specify anymore than that.  I wasn't sure I wanted to, or that I ought to. Then, I figured that I share so much else on here, and sometimes in the process help others in the same sort of situations, so I might go ahead and post about what happened.  Also, writing sometimes allows me to get things out that I can't do verbally. I am not very good verbalizing my thoughts and feelings.

Last week my father called me. I haven't spoken to him for about 2 yrs. Every time I called to wish him a happy birthday or happy father's day I'd get his voice mail. I eventually just stopped trying. He wanted to tell me that my mother had left him and that he was sorry for writing me off because my mother didn't like him speaking to me.  I was happy to hear from him and let all resentment toward him go.  I figured that my mother in her craziness would turn on others after I was no longer around to accept her abuse and drama.  I was correct.  After 34 years of marriage she packed up without warning and left him, going clear across the country to her sister's after clearing out most of the bank account.

I was excited to rebuild a relationship.  I had all these grand plans of him and my brother coming to visit, and we would do this and that.  I would finally have someone to talk to that was family, that cared for me and supported me.

A few days went by, so I thought I'd try to chat with him via skype, only to get a hold of my brother who told me that mom came home.  No one told me.  He said Dad would call me later.  That was almost a week ago.  He isn't calling me.  It's back to where it was.  I am the odd one out.  Cast aside, and vilified.  I was doing okay as it was.  I didn't need the false hope that maybe, just maybe I was worth something to them that they'd give me the time of day.  It was a wound ripped right open for me.  I was once again the weird little girl who no one noticed, and no one cared about.  My desperation for this acceptance was so great.

Old behaviors started creeping back in... namely anorexic thinking with it's old friend body dysmorphia.  I create these things to control something. If only I was thin and pretty enough people would like me. As well as it's a way to control and punish myself for not feeling good enough by other's standards.  Thankfully, I have a husband who is here for me.  He quickly reminded me of how ridiculous this whole dieting thing was.  I am not overweight and if I lose more than a few pounds I will be classified as underweight.  I wear a size 5/6 (UK size 7/8) and am not short.  Dieting very much for me at this point could be dangerous.  Logically, I know that, but that's not how I feel inside.  I feel desperate to change something.  To do something. I just want to be accepted.  I want to feel worthy and good enough.

After I had a massive meltdown yesterday, and got some sleep I feel better today.  I am able to get back on track with healthy behaviors and let go of what isn't and never was.  It's an unfortunate situation, but one that I am stuck with.  I may as well make the best of it and do what I can and leave the rest alone. 

This whole situation remind me of a dream that I used to have often as a child.  It's one in which I somehow got turned into a ghost and no one could hear or see me.  In the dream I'd scream and beg for my parents to reply to me, only to be ignored. I'd go to school where the same happened.  Everywhere I went I was invisible.  I wasn't noticed.  I would eventually get myself so worked into a desperate tizzy that I'd awaken, crying and terribly anxious.  Through the years, the dream would change a bit in scenery, and such, but the theme would remain the same.  I'm tired of being that sad, lonely, ignored little girl.  I'm ready to be noticed by those who matter most.  My husband and kids, and forget the rest.