Freestyle Ramble

It's getting to be be the latter part of October. The leaves are beginning to fall quickly from the trees and the colors are changing from olive greens to yellows and some rusty reds. In Kansas it's not always predictable what type of fall you'll get. Sometimes it might get too cold too quickly causing the leaves to fall from the trees before turning many colors at all, or other times there can be spectacular bursts of cascading colors that lasts into November.

Much like our fall my physical health is this way, especially this time of the year. Unpredictable. A few years ago when the migraines began to take hold I noticed that in fall they would get noticeably worse more years than not. I am kind of waiting to see how this one pans out. So far not much of a change in the norm of how it's been. I was finally able to see a specialist, so maybe a solution, or at least an improvement in the severity is on the horizon? Fingers crossed.

Tomorrow is Bubby's last IEP meeting. Yes. Last. He will graduate high school in May. He will turn 18 in about 2 weeks.

I will let that sink in for a second for long time readers. 😂

This Year's Theme: Acceptance

I've never done well with new year's resolutions. I don't think I have ever even made a serious attempt to make any. I think a lot about it. I think a lot about a lot of things. I think thinking is probably my number one hobby if I am to be honest. Hahaha. But, I have never in my recollection, made resolutions on January 1st that require me to give up something, or change myself into something new for a new year. It's just not my style.

Goal setting, however... that is different. I know some people might see them as the same things with different names,  but to me they are not. Resolutions are, within this context, something to rid of, or banish. It feels like it's almost a punishment. Like, I'm gonna somehow be different come January 1st. December 31st, cake and alcohol, but January 1st it's all kale and smoothies. "I'm getting serious in 2019", I hear people say. It's straight from one extreme to another, usually without a long term plan of sustainability. Just the end goal in mind. People usually know what they want, and they have a kind of clue how to achieve it short term, but not on hard days, or days when things aren't following the plan, or all kinds of other obstacles.

Experiencing a Shift in Perception #SelfAwareness #MentalHealth

Yesterday was a rough day. It began with a migraine as soon as I woke up that by afternoon morphed into the worst one I have ever had in my entire life. That is saying something since I have chronic migraines.

I found myself laying on the couch with a pillow resting over most of my head to provide a blocker for light, and some pressure for my forehead. With nausea and pain building it's way into a vortex of spinning hell, despite trying all meds I had at my disposal I was reduced to laying still as a stone. This is the kind of sickness that renders a person unable to breathe without increasing one's pain. There's nothing to do but lay there and deal. I couldn't even watch TV, and so much of my energy was going toward not vomiting that it was a serious challenge.

There's something kind of dismally sweet about not being able to do any activity besides think for hours on end. When you're laying in a puddle of pain and illness for hours there is nothing else to separate you from your thoughts. Not that I am one to run away from my inner thoughts, but it's entirely different for me when there is nothing to distract my mind from wandering in every which direction it wants. At least for me, these are the times that my inner world becomes exceptionally vivid with thoughts of the past dancing across my mind's eye, and thoughts of the present as well. I suppose due to the heaviness of my emotional state those thoughts aren't always the most pleasant, or the most happy. Small issues that nudge me during usual mind frames that would get pushed away come at me full color with no escape. As I laid there in misery I realized a lot of hard truths that I had been avoiding.

In this place I met some of my fears

Resting with Chronic Illness

Today I ran a thousand miles through the heavy autumn air with leaves crunching underfoot as my breath grew deep, and my legs weary.

Well, maybe not a thousand.

Maybe I didn't run, either. But, it felt like it. Let me explain....

As I mentioned before, I have chronic migraines (among a few other illnesses) and yesterday I was struck down with a pretty severe one. Today it seemed to let up some, but the after affect lingered. My body was beyond exhausted. My head was foggy, and not communicating well with my brain. In general my body ached, and moaned reminiscent of the flu, or maybe a horrid hangover.

I felt the fog lifting, and the heaviness begin to ease about 2 hours ago. I'm sure that this isn't what feeling all the way well feels like, but in comparison I feel as if I could climb a mountain at 9:30 PM. I wish I could say this is unusual, but it isn't. My brain seems to come alive in the afternoon, and by evening energy levels soar. My pain is usually by far less in the later part of the day. I want to live by the moonlight, but unfortunately the world is on another schedule.

I wonder what people think when they think about the daily lives of people with chronic illnesses. Do they imagine a frail person taking pills, and laying on the couch all day? Do they think about all the rest we all must be getting? Do they imagine us with energy reserves that we can tap into as the need arises? Much like a bank account, or a camel. Do people suppose that when we stay home for a day that we can feel refreshed later?

Catching Up

Hello everyone! This is going to be one of those catch up, update, rambling type of posts. I think some people like to read these, and some some don't. I just feel that it's been awhile, not only since I posted, but since I posted any kind of personal entry that wasn't a recipe, or how to informational type of content,so I was overdue for a real chat with you all.

So, why have I gone MIA on this blog? A lot of reasons, really. It's not a complicated story, just tedious, and boring. You know, life stuff. My husband has been really ill with a gastronomy issue that has yet to be identified by doctors. It's been ongoing for about 8 months now. That has been difficult to contend with as I adjust to doing more where he can't. I also still have chronic migraines and more. My oldest was married in late September, so that also took a lot of time, and energy. We decided to get a kitten, then two days later found a litter in our carport. Hahahaha. Some were in poor health, and required extra care. I am glad to say they are all doing great now, and ornery as ever. Almost completely potty trained, too! They are too adorable, and I blow up every social media site I am on with their pictures!

Managing Life with Migraines

Today was another doctor's appointment for me, in yet what has become a long, and sometimes desperate search for relief from the chronic migraines in which I suffer.

This time I went in 90% with my mind made up that I was finished with preventative meds. I wanted to remain steadfast in this stance, so I would not be persuaded in the moment, only to regret my decision on the way home as I often do. Still, I left the door cracked open so I could listen to reason, with a healthy mind frame of skepticism. I wanted to express that the current preventative med that I am taking is not helping, and the side effects were outweighing the benefits at this point, namely weight gain (which is a very touchy subject for me to begin with) and stomach pains.

And, so I did. I explained how I feel like I can't separate the side effects from my illness(s) at this point. There's no way to differentiate what is where, and I'm tired of putting my body on this roller coaster with only a small amount of relief. I asked for a pain reliever, and a break from everything else related to migraines. Long term, this may not be a good option. I'm aware of this. I just feel it is for where I am now. I can always take the doctor up on the offer for another med, or a referral to a neurologist later on.

I'm sure that there are loads of people that are in the same situation as I find myself in right now, chronically ill, and feeling like they're out of options for relief, or even a shot at living a life that they once knew. It's hard to accept

My Questions for a Self-Aware 2017

It's Christmas evening here as I write this. I've done all the exhausting holiday runaround. Presents were wrapped, and unwrapped. Food was made, and eaten. Joy was anticipated, and gratitude was shared with family, and friends. I feel like I have a lot to be thankful for, and a lot of happiness was shared today. It was a day full of effort, though, and I'm one tired woman! I am sitting here on the downside of the excitement of Christmas, and pausing with anxious breath for the new year.

This year has brought with it a lot of challenges in the health department for me. I wonder how it might be for the new year? It is something of a game changer in that I have had to learn to become flexible with myself.  I've had to learn to allow myself room to adapt to new strategies, because I can't always do the same things to the same levels of perfection, or completion anymore. These are things that I am still learning how to do. When I have a painful bladder flare, or a migraine attack I might not be able to function at the same level as I always have, and learning how to navigate this new terrain of chronic illness has been difficult for my whole family.

For example, due to a particularly bad month of migraines, I was not able to do my usual Christmas cards, and treats that I normally do. This was hard for me to let go of, because it's such a big part of how I celebrate the holiday season. It was just more than I had to give this year, but hopefully next year I will be able to pick this tradition back up, or maybe I will be able to make some late treats for the New Year.

With all that being said.....

I did want to do a Christmas post, even if it was not a very long one. Something to let you all know that I am still here, and am still blogging, and will continue into 2017. As a matter of fact, I wanted this to be a pre-2017 post. A contemplative post of sorts. I'm going to ask a few questions here on this post. Then I am going to think about them, and post my answer in a new entry on or before the 1st of January. I think this kind of self-discovery is important, and required for meaningful growth. Plus, it's just fun. :) I hope you will join me! If you do let me know either by commenting below, or emailing me, or via Twitter, or some other way! I'd love to read what you have to say!

Where I've Been

Some of you that follow my blog are probably surprised to see this entry pop up in your social media feed. You may have wondered where I've been, or even forgotten about me, since it's been 2 months since I've written anything.

Summer has always been a busy time for me, and my family. There's just so much more to do in the summer, and I always need to be outside, and on the go, which means being online has to be done in small intervals. This summer has been no exception to that. We have been trying to get out as much as possible to enjoy the outdoors, and all of the activities that summer brings. They are all of Bean's favorite things to do, so I try to maximize opportunities as much as I can. However, this year has been harder than others to do that due to chronic migraines. Every other day, or two I have one, and it's a struggle for me to keep up with life in general. The swirling nausea, and dizziness slows me down, and the aphasia makes it impossible to write on a lot of days, even if I were to have the time.

Health wise it has been really difficult. Having a chronic illness kind of rearranges your life forcibly in ways you never thought about before, but suddenly have to deal with. I have no choice. It's not heroic, or inspirational, or any of those things. I'm a mother, and a wife, and a human being who has responsibilities. I have to get on with things, even if I have to do so in a different way then I had before. So, things have been prioritized, delegated, rearranged, and done at probably much slower speeds than I used to do them, but they're getting done.

Another reason that I find it hard to find the time to write anymore is that taking care of Beans has really

Oh My Migraines!

There has been more than one post here on this blog began recently by me only to be abandoned in the draft folder, unfinished, and gathering mental dust. I'm not one to usually start a writing project, and then move to another before finishing the first. When I do, it is usually certain death for the first piece, as I never again get my thoughts back on track to completion. I tend to forget where I was going, and it all gets derailed.

This time is different. Or, maybe it isn't in the grand scheme of finished products, but in the situation behind what is driving my haphazard writing. In the last few months I have been suffering from migraines. They seem to be be getting progressively worse to the point where I am now, which is almost always in a constant vortex of pain, nausea, and vertigo. I lose my words. My thoughts get lost in a cloudy fog of confusion. I find it difficult to complete daily tasks that need to be completed, and things like writing get put way at the end of my to do list. My ability to read, and write is so compromised at this point that being able to complete more than a few sentences with comprehension fully intact is difficult at best.

This has been exceptionally hard for me, because I am a very active person. I am fully dedicated to my fitness routines, and am always baking, cleaning, and playing with Beans. When I am not up, and moving I am mentally engaged in writing, couponing, social media, and more. I am rarely sitting still passively watching TV, or something like that, so when an illness strikes me that compromises all those things, the things that make me feel like me, I have extreme difficulty coping.