One Year Post #Hysterectomy Update

On July 29th it was one year to date since I had a hysterectomy. I thought that doing a little update post about how that year has been for me, and how I feel about it now would be good for women that may be considering having one, or possibly just had one.

Of course, this is just my experience. I don't intend to represent a standard of healing. I do, however, want to tell my story, and possibly offer some hope for others. If one was to look on the internet for hysterectomy stories a lot of what you'd come away with would be bleak. I don't know why. Positive stories aren't as easy to find as the negative ones.

I think the hardest part was the healing time. Since I am in such a busy household I couldn't really rest as well as I'd like to have. I talk about that some in a past post: Recovering From a Hysterectomy in an Autistic Household so I'm not going to repeat it all here in this post.

The first few months after the hysterectomy everything seemed to be doing okay. I was easing back into my routine, and all was pretty good. The only thing that was not was that I was still in pain. I spoke to my doctor about it, but no one quite knew why my bladder was hurting so much, but chalked it up to just a slow healer.

Then, in October my energy dropped, and depression started setting in. A different kind of depression than any other I've had. It was a deep to the bone heavy weight, immobilizing kind. I pushed through it. It came, and went.

By January my bladder was hurting worse than ever. I went to see a doctor, and long story short after several appointments with specialists I was diagnosed with interstitial cystitis.  I realized that a lot of the pain I was blaming on the endometriosis was really due to this bladder issue. Most of the time it is not all that bad, but sometimes the pain is comparable to active labor pain. I am in pain every day, but usually it is tolerable. Now, I can get the correct treatment that I realize that not all of the pain I was experiencing was due to the endo.

During the months of November through early January I had began to gain weight. Nothing I did seemed to help, and it was all gathering around my tummy. It was evident as my mood shifted, and my weight changed that even though I had kept my ovaries they were not working properly. I had thought that I had made the worst mistake ever. I felt like I was doomed to this life of weight gain, and depression.

Thankfully, by February

6 Week Milestone!

Last Tuesday was my 6 week mark from when I had a hysterectomy. I thought that since I did a pre-surgery post, and a one week post op post I would do a 6 week milestone post.

The doctor gave me the all clear for exercise, and other activities. He said I healed up well. I have been taking my return to normal activities very, very slowly. As I said in my last update post, I definitely did not get much of a reprieve from my regular duties around the house. My usual routine was most of the way in full effect by week two. My exercise routine was not. Neither was my ability to lift heavy things like the trash, cases of water at the store, and jumping on the trampoline with Beans.

I was pretty nauseous up to week 4. That is when I finally got my appetite back fully. I still needed ibuprofen for pain, and occasionally pain meds, too. My stomach was still pretty swollen, and I really felt a bit deflated emotionally between weeks 3 and 4, too.

Week five is when I began to feel much better. My swelling went down to reveal a much flatter stomach then what I had before the surgery, so I was pretty happy about that. I had no pain, and was feeling fine. The doctor said that my uterus was twice the size it is supposed to be, so I think without that in the way everything was moving along pretty well.

Week five is also when I decided to start back up on my exercising. I began with this video, which I did daily:

Recovering from a Hysterectomy in an Autistic Household

In my last post I talked about preparing for an upcoming hysterectomy.  It now has been a week, so I thought I'd do a little update. When I was recovering what I appreciated most was knowing what to expect in my recovery period. Especially the first week. I knew the vague details I had been told by the hospital, and read online, but I wanted to know a more day by day play of what others experiences were. I thought that I could write about mine so that other women might be able to learn something from it. Especially, those of us on the spectrum who need a lot of preparation ahead of time for things. Also, this might be helpful in terms of what to expect if you're a mother of children with special needs. This post is bound to be long-winded, and maybe boring to many. You've been warned!

Day 1- The Day of surgery.

Anxiety and Routine Change- preparing for surgery

About four months ago I posted an entry titled 'Could it Be Irritable Bowel Syndrome?' I have a major update to that post.

I did follow those steps for awhile, and my stomach did not feel better. As a matter of fact, some of my issues got even worse. Thankfully, I have obtained insurance (Thanks Obama!) to actually see a doctor about what to do next.

It took me several visits to finally get my regular doc to hear what I was saying. I think this is not due to her inadequacy, but more leaning towards my failure to communicate in ways people understand. I am still trying to work out why I am not able to typically get people to listen, and respond to me when I need something. In this instance, I finally wrote down all of my symptoms, and brought them with me to the office for my appointment. That got immediate results. Upon hearing all of my symptoms my doctor said it sounds like I have endomentriosis. She scheduled me for a appointment with an OBGYN.

At that appointment he concurred that it sounded like endo, and he quickly got me scheduled for a surgical  procedure called laproscopy that would take pictures of my reproductive organs to see if endometriosis, or anything else was present.

The results were that I did indeed have a fair amount of endo. scarring, and a condition known as adenomyosis, or enlarged uterus. These were definitely the cause of so much of my stomach distress, which has worsened considerably the last few months. The doctors all assured me the only cure is a hysterectomy. Without one, the problem would likely continue to worsen until menopause. I am several years away from that, so I have opted to get the hysterectomy.