Hello Again!

 Well, hello! 

I bet most of you thought that maybe I'd given up blogging. I'd only made a few posts this year and haven't done so in something like four months, so I would see how people would think that.

Truth is, I have thought  about giving up blogging, due to a few different factors. One being that it doesn't seem to be very popular anymore, so when I do put in the effort to publish something it's often not read by very many people. The second reason is what I mostly wanted to talk about today. Chronic Illness. 

When I began blogging something like 15 years ago it was about autism, mainly about my two autistic kids. They have now almost grown up and like them I have grown, as well. Seems kinda weird to talk about their lives through a blog when they're 18 and 16. It's an invasion of their privacy as well as an unethical form of voyeurism, imo. I had thought about this awhile ago and began to scale back the amount of info I shared about them online in a public forum. Maybe I should never have been so open about their lives to begin with? I don't know. Probably not, but hindsight is 20/20. When we know better we can do better. The best any of us can do is adjust our behavior to the knowledge we continually seek, refusing to stay uninformed and ignorant about how we affect others and they affect us.

Besides, the last ten years or so I have moved to speaking out about my own autism, and how I view the world through the unique being that I am. This took up quite a  lot of the space in the blog, until I began to feel I had almost run out information to share on the topic. 

Then, I opened up the scope of focus to include introversion as well. As I aged and learned more about myself I felt that being an introvert has been a very large part of who I am,  almost as much as the autism. I felt the need to further explore what being an introvert means to me and how it has impacted my life. I wanted to connect with a wider community than just the neurodiverse,  so I changed the blog (and blog page on FB) to the current name,  replacing Inner Aspie. I'd outgrown that name, that persona in a variety of ways, so I wanted the title of my writings to reflect that. In doing so I have been very lucky to connect with many new friends that I cherish. 

Now, I am including chronic illness as a focus, or a sub-focal point (?) to the blog. This isn't entirely a new topic on here. If you've been a long time reader you probably remember some posts speaking of migraines and such. It seems that I have found out the cause of my ever growing and ever changing physical maladies that have prevented me from being able to be as active as I'd like, including things like blogging. 

I'd been to my regular physician and a neurologist these last couple of years trying to find out what is causing my symptoms and what can be done. Tests and more tests have been run. Then after a very detailed lab panel had been run and come back fine my doctor told me I have Chronic Fatigue Syndrome or Myalgic Encephalomyelitis 

I knew basically what that was, and wasn't happy to hear that diagnosis, at all. I felt my stomach sink as she told me there's not a lot that she can do  for me. I left with a printout about ME feeling a bit defeated. 

 

I'm still learning about what it is and how it applies to me. Looking back over my life now I realize that I probably have suffered from this illness on and off to varying degrees since I was 15. I'm now trying to tease apart what has been depression and what has been just flat out exhaustion and malaise, for one. There's been a lot of assumptions I've made about myself and who that I am that I have to reevaluate now. It's been a very freeing process to understand myself through this lens, letting go of shame of who I thought I was and who I admonished myself for never being. 

 

I'd love to be able to express this whole journey through writing about it here, and I plan to  as much as possible, but the amount possible is where the difficulty lies. Much of the time my head is so foggy and even thinking about putting together coherent sentences is beyond my reach. Still, it's my hope to be able to continue to blog here on the days the fog subsides and I have a tiny bit of energy to spare.  This place here is a digital representation of my soul., safe and authentic. Thanks for visiting, friend!

Embracing Awkward

"You're the coupon lady," the sales clerk said as he walked past me in the store. I looked up from my coupon book confused by sudden conversation. "I see you on FB."

"Oh. Yeah, " I mutter. "It's my thing."

"Hey! Gotta save, right!" He says. He knows who I am, and chats with me every time I go into the store when he's working.

As I finished shopping I waited for the familiar shame of one of my weird interests being noticed to come up, but it didn't. Maybe, a slight embarrassment trickled in. A slight wonder of how the people in our small community perceived me definitely came up. There were worse things to be known as as than "the coupon lady". For instance, there is a lady known simply as "the crazy lady". I know it isn't nice, but it's how she is known in our town. I certainly didn't give her the moniker.

I did feel a bit exposed, as I always do when people call attention to one of my interests, or hobbies that I find out of the norm. I don't have too many interests that are pop culture, so many of the things I do are solitary activities off the beaten path. Even my favorite television shows are not what other people are watching, and I watch very few movies. It can feel a little scary sitting out there on my own, sometimes not really part of any group. These common threads are often what builds friendships. I don't have anything to add to topics of television shows, musical artists, and movies I have never heard of.

The few days following the store incident I kept going to back to what happened. I wondered what might have been different with me in that an incident of that nature in the past would have made me upset. I would have taken it as an insult, and as if the person was making fun of me. I would have avoided them in the future, and probably would have cried after leaving.

This time, I felt

Being Me

One major change that I have been working on in my life is not caring what others think of me. It is not true that people on the spectrum don't care what other people think about us. I do care, and I know others that do, too. What I don't care about is impressing people with status symbols, like clothes, cars, and a big nice house, ect..

However, I very much care if someone thinks I am annoying, stupid, ugly, a bad mom, or a host of other negative personal attributes. Not knowing always how to read people, and how to gauge situations I have learned to cope by playing it safe, and not saying, or doing anything until I am 100% certain it is appropriate to the situation.

I have stopped doing that. Now, if I feel like saying or doing something I do it. I worry that others' will think less of me for doing so, but the truth is I have to be me. I am tired of painting myself in the corner just to blend in. I'm going to do what I want for a change.

Sure, maybe not everyone will like what I do, or say, but that's fine. One of the hardest lessons I ever had to learn (and to be honest I am still learning it) is that not everyone is going to like me, and I am not always going to like everyone else. It's the way it is. We're not all always going to get along.

What I have found so far is that the less I consume my mind with wondering what others are thinking of me the less I think negative things about others. I simply notice the differences between us, and that's all. I am taking things much less personal these days. It's true that people are still doing the same things that always have gotten under my skin, but it affects me less.

This new outlook has improved my life