Depression is such an interesting phenomenon, isn't it?
It has so many variables from person to person. There's not just one type, is there? No. There's literally hundreds that manifests in so many different ways within it's hosts. Some stays are for days, some are for weeks, months, or even decades. Some drag it's host to the ground and keep them there for long periods at a time, others are able to walk around, but with a feeling of a heavy burden weighing them down with each laborious step.
I do write a lot about depression. I suffer from my own type. I speak from my own experience from my own struggle with illness, because this is how I cope. Maybe your experience won't match mine at all. That's okay. With the unique way my brain is wired neurologically I have come to expect it likely won't. I'll write about it anyway, and possibly someone might see bits of themselves within these words and at least know they're not the only one experiencing them.
Showing posts with label coping skills. Show all posts
Showing posts with label coping skills. Show all posts
Tuesday, July 31, 2018
Tuesday, April 5, 2016
Responding to Challenging Situations with Your Autistic Child
I haven't written much about either one of my boys recently on the blog, at least not in any specific kind of way. Part of that is is because I haven't had much to write about. The other is that I am never sure what is too much when speaking about them in their youth in this public forum. The main part is that my writing style has shifted a bit to a more general subject matter that specifically includes my personal thoughts about life, and is less about autism in, and of itself.
This entry is one in which I hope does not breech my son's privacy boundaries to a great extent, but still is able to get a point across that I am wanting to.
Bubby is now 14 years old. He's grown into a fine young man with a deepening voice, and a fuzzy little mustache above his top lip. This summer he will be getting his learner's permit to begin to drive. To be honest, I have no idea how that will go. I suspect it will go fine. He's doing very well in school with his current IEP.
It was not always this way. There was so much that we had to go through with the school to get to where we are, and attitudes we had to change.
What if I told you all that 80% of the issues that I see parents (and school staff) face with their autistic kids can be resolved by viewing it in a different perspective? Would you be interested in learning a different way to interact with your child so that meltdowns, and arguments don't ensue so frequently?
The biggest mistakes I see most parents make with their autistic children are
This entry is one in which I hope does not breech my son's privacy boundaries to a great extent, but still is able to get a point across that I am wanting to.
Bubby is now 14 years old. He's grown into a fine young man with a deepening voice, and a fuzzy little mustache above his top lip. This summer he will be getting his learner's permit to begin to drive. To be honest, I have no idea how that will go. I suspect it will go fine. He's doing very well in school with his current IEP.
It was not always this way. There was so much that we had to go through with the school to get to where we are, and attitudes we had to change.
What if I told you all that 80% of the issues that I see parents (and school staff) face with their autistic kids can be resolved by viewing it in a different perspective? Would you be interested in learning a different way to interact with your child so that meltdowns, and arguments don't ensue so frequently?
The biggest mistakes I see most parents make with their autistic children are
Wednesday, February 4, 2015
Miss Despondent Gets a New Attitude
When I penned the last entry I noticed something that I definitely would not have if I had not been blogging. I was talking about how depression had shaped my current thinking, and whatnot, and I relayed it to a past post about depression, Kinda hard for regular readers to recall what recent entry has not been about depression, right? Anyway, I went to link it up, and noticed something as I was copying the link location. That entry was from a couple months ago. Then, I decided to look at the list of all of my blog entries, and realized that the first one that I begin to discuss this current bout of depression was in October. October?! I did a quick count on my fingers. That was four months ago! Has it been that long? Surely I have not been in this state for four months. I couldn't have been. Wouldn't I have known?
I had no way around the facts that were laying out there in black, and white. I have been slipping into a very serious depression, and I was not fully aware of it.
I thought, how could this be? My only answers were that it was comparable to a frog in a pot of water that is slowly heated until he's done. I didn't notice it, because it was a gradual decline into discomfort. Every now, and then the water might cool off, and then I'd notice it when the temperature sharply rose again, but for the most part it was a game of complacency. I would know I was down, but I got so used to feeling that way that it became my new norm, so when the depression pulled me even deeper the slight change was only a tinge of noticeable difference in mood.
At first I thought that I really shouldn't write yet another blog entry about depression. Won't my readers get tired of reading about my woes? Maybe. I don't really know. What I do know is that I write what I feel, and right now my truth is this horrid black cloud hanging over my head. I'd never bring it up in real time conversation, and you'd never know I was so far down if you were talking to me. The thing is, on my bad days no one talks to me, because I make sure they don't. I cancel appointments, and don't answer the phone. I sleep a lot, and watch tv. (Two things I don't do much of.) It's not like it's something I really want to bring up in everyday conversation.
If this were one of my bad days I wouldn't be writing this entry at all. I'd not have the thought process to do so, nor would I feel that I had anything of value to share with anyone anyway. I simply wouldn't bother. If I did it would be full of dark humor, and swear words. You might think if someone is depressed they lose their humor. That's when some of us get ours really warmed up. The more down I get the more twisted, and sailor-ish my thoughts get. Think Lewis Black, or Anthony Jesselnick. Not only are my thoughts crude, and dark, but that little part of my brain that says "No. Don't say that." isn't there. It goes away leaving me no filter, at all. I simply don't care enough to care. I don't even consider if I sound offensive to anyone. That would require too much thinking, and anxiety. Did I mention my anxiety goes almost all the way away when I am feeling really down? Yes. I no longer care about my weight, or if I might be late, or if I'm upsetting people. I really have zero f*cks to give about pretty much anything related to myself.
It's not that I feel rock bottom low all the time anymore. I have days where it isn't so bad. Most days are a big mixed bag, though. Mornings have been by far the worst. This is new to me. I have had other depressions before, and all of them caused my mood to dip in the evenings. All my energy was spent by then, and I would fall into sadness. This time, however, my mood fares much, much worse earlier in the day rather than later. Most days I am hit with a wall of sadness, and despair as soon as I open my eyes. Literally, the first moment of consciousness is one that reminds me I am still here, and I am still feeling the same. It's almost as if I'm disappointed that I even woke up most days. By late afternoon my mood has usually improved to a very solid coping stage. I am able to get moving, and get stuff done.
Except I don't get it all done.
I had no way around the facts that were laying out there in black, and white. I have been slipping into a very serious depression, and I was not fully aware of it.
I thought, how could this be? My only answers were that it was comparable to a frog in a pot of water that is slowly heated until he's done. I didn't notice it, because it was a gradual decline into discomfort. Every now, and then the water might cool off, and then I'd notice it when the temperature sharply rose again, but for the most part it was a game of complacency. I would know I was down, but I got so used to feeling that way that it became my new norm, so when the depression pulled me even deeper the slight change was only a tinge of noticeable difference in mood.
At first I thought that I really shouldn't write yet another blog entry about depression. Won't my readers get tired of reading about my woes? Maybe. I don't really know. What I do know is that I write what I feel, and right now my truth is this horrid black cloud hanging over my head. I'd never bring it up in real time conversation, and you'd never know I was so far down if you were talking to me. The thing is, on my bad days no one talks to me, because I make sure they don't. I cancel appointments, and don't answer the phone. I sleep a lot, and watch tv. (Two things I don't do much of.) It's not like it's something I really want to bring up in everyday conversation.
If this were one of my bad days I wouldn't be writing this entry at all. I'd not have the thought process to do so, nor would I feel that I had anything of value to share with anyone anyway. I simply wouldn't bother. If I did it would be full of dark humor, and swear words. You might think if someone is depressed they lose their humor. That's when some of us get ours really warmed up. The more down I get the more twisted, and sailor-ish my thoughts get. Think Lewis Black, or Anthony Jesselnick. Not only are my thoughts crude, and dark, but that little part of my brain that says "No. Don't say that." isn't there. It goes away leaving me no filter, at all. I simply don't care enough to care. I don't even consider if I sound offensive to anyone. That would require too much thinking, and anxiety. Did I mention my anxiety goes almost all the way away when I am feeling really down? Yes. I no longer care about my weight, or if I might be late, or if I'm upsetting people. I really have zero f*cks to give about pretty much anything related to myself.
It's not that I feel rock bottom low all the time anymore. I have days where it isn't so bad. Most days are a big mixed bag, though. Mornings have been by far the worst. This is new to me. I have had other depressions before, and all of them caused my mood to dip in the evenings. All my energy was spent by then, and I would fall into sadness. This time, however, my mood fares much, much worse earlier in the day rather than later. Most days I am hit with a wall of sadness, and despair as soon as I open my eyes. Literally, the first moment of consciousness is one that reminds me I am still here, and I am still feeling the same. It's almost as if I'm disappointed that I even woke up most days. By late afternoon my mood has usually improved to a very solid coping stage. I am able to get moving, and get stuff done.
Except I don't get it all done.
Sunday, June 29, 2014
Helpful Guide to Understanding Meltdowns
One of the most common questions that I am asked is about meltdowns. It is understandably one of the biggest issues a person on the spectrum can face, and it can really make loved ones feel helpless. I always feel a little bit hesitant on giving much general advice. I find that there are about as many different types of meltdowns, as well as ways to help as there are autistic people. What works for one may not work for another, and vice versa. So, I thought that I could offer some general tips and ideas based off of what I have seen in my life. Some of these won't apply to you, or the autistic people you might know, but hopefully a few will be able to at least provide a little insight.
So, what is a meltdown?
This questions jumps right to the center of what this entry is about. It's also one that is really hard to answer. I don't know how to describe something that has no physical form. It's almost like trying describe what an emotion is. I just can't quite find the right words to convey the depth of a meltdown, and it's many, many facets.
I think a common misconception is that there is only one kind of meltdown. This is what makes it seem so elusive to onlookers who want desperately to problem solve when their autistic child/loved one is in the throes of what they think is a meltdown. What worked last time might not work this time, and a trigger that seemed to be mild last Thursday might be too much today. There's different types of meltdowns, as well as different combinations of things that tend to set one off at different times, and believe it or not is even unpredictable to many of us adults who are very self aware.
I can list a few different general types, and triggers so that you might be able to gather some info from here to possibly compare to your own situation. One thing that I heard once from a behavior specialist is that a meltdown is like a seizure in that you cannot stop one once it's started. You can make one worse, and you can prolong it's effects, but once the brain has reached that tipping point it is over. You can't unspill the overload, which is is to me what a meltdown is. It is an acute reaction to too much happening all at once, in which the brain has no way to cope, or contain. The excess must go somewhere. From what I can gather there are three main categories of meltdowns. Sensory, Executive functioning mishaps, and Emotional.
The different types of meltdowns:
So, what is a meltdown?
This questions jumps right to the center of what this entry is about. It's also one that is really hard to answer. I don't know how to describe something that has no physical form. It's almost like trying describe what an emotion is. I just can't quite find the right words to convey the depth of a meltdown, and it's many, many facets.
I think a common misconception is that there is only one kind of meltdown. This is what makes it seem so elusive to onlookers who want desperately to problem solve when their autistic child/loved one is in the throes of what they think is a meltdown. What worked last time might not work this time, and a trigger that seemed to be mild last Thursday might be too much today. There's different types of meltdowns, as well as different combinations of things that tend to set one off at different times, and believe it or not is even unpredictable to many of us adults who are very self aware.
I can list a few different general types, and triggers so that you might be able to gather some info from here to possibly compare to your own situation. One thing that I heard once from a behavior specialist is that a meltdown is like a seizure in that you cannot stop one once it's started. You can make one worse, and you can prolong it's effects, but once the brain has reached that tipping point it is over. You can't unspill the overload, which is is to me what a meltdown is. It is an acute reaction to too much happening all at once, in which the brain has no way to cope, or contain. The excess must go somewhere. From what I can gather there are three main categories of meltdowns. Sensory, Executive functioning mishaps, and Emotional.
The different types of meltdowns:
Tuesday, January 14, 2014
The Autistic Student- Won't vs. Can't
It seems pretty common to hear parents of ASD children talk about a time when someone told them that their child can't or won't be able to do this, or learn that. I come across stories like that all the time. As wrong as I think that is, that has been rarely my experience with my kids, or even myself. As a matter of fact, it's been the opposite.
I don't know how many IEP meetings that have been called by me to discuss services for Bubby. No one has ever said "He can't do it." It's always been "He can if he tried."
I don't know how many IEP meetings that have been called by me to discuss services for Bubby. No one has ever said "He can't do it." It's always been "He can if he tried."
Wednesday, October 30, 2013
#Autistic Inertia
I have erased, and began again on this page. I look at the blinking cursor as I try to get my thoughts out, but none are quite what I want to convey. I imagine this blockage would be worse if I were having to actually speak, instead of type. So many thoughts in my head, and emotions building that I can't quite articulate any of it, and it's seemingly stopping me from doing anything productive.
I call this phenomenon autistic inertia. I may be not even be enjoying whatever repetitive activity that I am doing, or thoughts that I am dwelling on, but they are looping in a manner inside my brain, and freezing my body in a way that I can't seem to break free from.
I know that I should do something else. I know that I have tons of things that need done. I know I am behind, and should get moving. I am aware of the time. The clock is making me nervous,
I call this phenomenon autistic inertia. I may be not even be enjoying whatever repetitive activity that I am doing, or thoughts that I am dwelling on, but they are looping in a manner inside my brain, and freezing my body in a way that I can't seem to break free from.
I know that I should do something else. I know that I have tons of things that need done. I know I am behind, and should get moving. I am aware of the time. The clock is making me nervous,
Tuesday, October 8, 2013
What If I Can?- letting go of the belief that I am limited
There are events that occur in our lives that change our path to something radically different in just a few minutes, or hours. Last month, one of those life changing events happened to my family.
When Beans came home from school hurt on the 10th of last month my journey as a mother took a sharp turn. I pulled everything to a halt, as I searched for answers as to what happened, and what I can do to help Beans get the education he has a right to receive. I didn't count on the odds being stacked against us. I didn't anticipate so much hostility from the people that are supposed to educate my child, and have his best interests at heart. The shocking amount of covering up for each other, and adversarial nature of all involved was a life lesson I wish I never got.
As my biggest fears were realized in this situation I realized something else. I realized that my biggest, most tallest fear was that I was incapable. The way in which I underestimated who I am, and what I can do is by far my biggest weakness, and my biggest fear producer.
I realized that in this moment of adversity I could fight it, and get stuck on the part where we are the victim, or I could move forward on this path that I have been suddenly thrust upon. I began to see the new situation, and the new found path as a journey full of opportunity, borne of unfortunate circumstance.
When Beans came home from school hurt on the 10th of last month my journey as a mother took a sharp turn. I pulled everything to a halt, as I searched for answers as to what happened, and what I can do to help Beans get the education he has a right to receive. I didn't count on the odds being stacked against us. I didn't anticipate so much hostility from the people that are supposed to educate my child, and have his best interests at heart. The shocking amount of covering up for each other, and adversarial nature of all involved was a life lesson I wish I never got.
As my biggest fears were realized in this situation I realized something else. I realized that my biggest, most tallest fear was that I was incapable. The way in which I underestimated who I am, and what I can do is by far my biggest weakness, and my biggest fear producer.
I realized that in this moment of adversity I could fight it, and get stuck on the part where we are the victim, or I could move forward on this path that I have been suddenly thrust upon. I began to see the new situation, and the new found path as a journey full of opportunity, borne of unfortunate circumstance.
Sunday, April 7, 2013
Mindfulness In Adults With Autism Spectrum Disorders-Guest Post
Guest post by: Dr. Annelies Spek. She writes at : Autism and Minfulness.org
Dr. Annelies Spek is clinical psychologist and senior researcher at the adult autism center in the southof the Netherlands (Eindhoven). Her Ph D thesis was entitled: cognitive profiles of adults with high functioning autism (HFA) or Asperger syndrome. Now she examines the effects of treatment in adults with autism. She also gives lectures about diagnosis and treatment in adults with autism.
Furthermore, she gives mindfulness training to adults with autism and she developed a training program for clinician s (who work with adults with autism) on this subject. For more information about (mindfulness in) adults with autism: here- mail address is anneliesspek@hotmail.com
The original book ‘Mindfulness in adults with autism’, has not been translated in English yet. If you would like to be informed about this in the future, send me an email. If you have any ideas that might help to have the book translated in English, please contact me!
anneliesspek@hotmail.com
Kind regards,
Introduction
Autism is a lifelong developmental disorder that affects functioning in multiple areas. Recent studies show that autism is often accompanied by other psychiatric symptoms, including depression, anxiety, hyperactivity, inattention and distress in general. Evidence suggests that depression is the most common psychiatric disorder seen in autism (Ghaziuddin et al., 2002). Especially adults with relatively high cognitive ability seem at risk for developing symptoms of depression, possibly because they are more aware of expectations of the outside world and their inability to meet those.
Symptoms of depression in adults with autism seem different than in other individuals, ranging from irritability to an increase in difficulty with change and sensitivity for sensory stimuli (Ghaziuddin et al., 2002). An important aspect of depression and distress in people with autism is the tendency to ruminate. This can be described as a drive to think repetitively and experiencing difficulty to let thoughts go. For instance, adults with autism often lay awake at night, pondering about the events of the day and analyzing those in detail. The tendency of people with autism to ruminate appears related to the detailed information processing style that characterizes autism.
Information about the author:
Dr. Annelies Spek is clinical psychologist and senior researcher at the adult autism center in the southof the Netherlands (Eindhoven). Her Ph D thesis was entitled: cognitive profiles of adults with high functioning autism (HFA) or Asperger syndrome. Now she examines the effects of treatment in adults with autism. She also gives lectures about diagnosis and treatment in adults with autism.
Furthermore, she gives mindfulness training to adults with autism and she developed a training program for clinician s (who work with adults with autism) on this subject. For more information about (mindfulness in) adults with autism: here- mail address is anneliesspek@hotmail.com
The original book ‘Mindfulness in adults with autism’, has not been translated in English yet. If you would like to be informed about this in the future, send me an email. If you have any ideas that might help to have the book translated in English, please contact me!
anneliesspek@hotmail.com
Kind regards,
Annelies Spek
_____________________________________________________________________ Introduction
Autism is a lifelong developmental disorder that affects functioning in multiple areas. Recent studies show that autism is often accompanied by other psychiatric symptoms, including depression, anxiety, hyperactivity, inattention and distress in general. Evidence suggests that depression is the most common psychiatric disorder seen in autism (Ghaziuddin et al., 2002). Especially adults with relatively high cognitive ability seem at risk for developing symptoms of depression, possibly because they are more aware of expectations of the outside world and their inability to meet those.
Symptoms of depression in adults with autism seem different than in other individuals, ranging from irritability to an increase in difficulty with change and sensitivity for sensory stimuli (Ghaziuddin et al., 2002). An important aspect of depression and distress in people with autism is the tendency to ruminate. This can be described as a drive to think repetitively and experiencing difficulty to let thoughts go. For instance, adults with autism often lay awake at night, pondering about the events of the day and analyzing those in detail. The tendency of people with autism to ruminate appears related to the detailed information processing style that characterizes autism.
Monday, April 1, 2013
New Places &Trying New Things
I thought this might be a good day to bring back some more journal type of blogging. Sometimes, it's nice to blog in a more structured form where there is a clear beginning, middle, and end to the whole piece. Those kinds are like essays, and they have their place in the blogging world, but then there's something to be said for the freestyle of writing that flows naturally from the writer as if you were having a conversation with them. It's a really authentic way to write, because readers can really feel they know you, and are a part of your everyday life, whereas essays type writing, while passionate, can be a bit colder. Soapbox persuasion is meant to express a particular point of view with a means to explain, or persuade, rather than to just discuss.
So, to kick off autism awareness month I am here to just write about my experiences. I may get an idea in my head later on about a good topic to write about, but right now I am too busy living my life, and doing what I do to really do much more. Autism awareness is something I engulf myself in everyday. April is not different in that for me. My page, this blog, and my advocacy at my boy's schools is what I do for autism awareness everyday. Sharing some social media photos, and wearing blue is not autism awareness to me. It does not do anything to change the current status of how autism is viewed.
So, here we go... Today, we have an appointment with
So, to kick off autism awareness month I am here to just write about my experiences. I may get an idea in my head later on about a good topic to write about, but right now I am too busy living my life, and doing what I do to really do much more. Autism awareness is something I engulf myself in everyday. April is not different in that for me. My page, this blog, and my advocacy at my boy's schools is what I do for autism awareness everyday. Sharing some social media photos, and wearing blue is not autism awareness to me. It does not do anything to change the current status of how autism is viewed.
So, here we go... Today, we have an appointment with
Tuesday, January 29, 2013
Autie Exhaustion
Today, I am suffering from autie exhaustion. What is autie exhaustion, and how does it differ from regular exhaustion, you may ask. I am not exactly sure there is a cut, and dry answer to that. I think there are differences. I am fairly certain that 'typical' people get exhausted from being overstimulated sometimes, as well, especially introverts. I think introverts will certainly understand how this feels, even if they never quite feel the depth of it the way autistics can.
This kind of issue is usually cleverly camouflaged by quick moving moods, that tend to appear,and fade without warning in depths
This kind of issue is usually cleverly camouflaged by quick moving moods, that tend to appear,and fade without warning in depths
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