I have erased, and began again on this page. I look at the blinking cursor as I try to get my thoughts out, but none are quite what I want to convey. I imagine this blockage would be worse if I were having to actually speak, instead of type. So many thoughts in my head, and emotions building that I can't quite articulate any of it, and it's seemingly stopping me from doing anything productive.
I call this phenomenon autistic inertia. I may be not even be enjoying whatever repetitive activity that I am doing, or thoughts that I am dwelling on, but they are looping in a manner inside my brain, and freezing my body in a way that I can't seem to break free from.
I know that I should do something else. I know that I have tons of things that need done. I know I am behind, and should get moving. I am aware of the time. The clock is making me nervous,
Wednesday, October 30, 2013
Monday, October 28, 2013
Ouch! That Hurt My Ego!
In my last post I talked about not only fearing, but expecting rejection, and another recent post I spoke about feeling almost depressed, and needing a break.
I think I see a pattern here.
In sharp contrast to me almost rock solid confidence in the recent post about letting go of preconceived notions of limits post I wrote just a few weeks ago I see a decline in mood. I see a decline in energy, which shakes my confidence up, leaving me feeling like maybe I don't got this.
I'm noting my ego is easily bruised by things that I usually would just let slide. I'm sensitive. My physical body is ill. My stomach is in knots,
I think I see a pattern here.
In sharp contrast to me almost rock solid confidence in the recent post about letting go of preconceived notions of limits post I wrote just a few weeks ago I see a decline in mood. I see a decline in energy, which shakes my confidence up, leaving me feeling like maybe I don't got this.
I'm noting my ego is easily bruised by things that I usually would just let slide. I'm sensitive. My physical body is ill. My stomach is in knots,
Saturday, October 26, 2013
Expecting Rejection-How can I stop?
Last night Hubby, and I went out on a date, as we do most Friday nights. I know that is like a dream for most parents, much less special needs parents. I am aware of how lucky I am to have this opportunity to go out for a few hrs child free with my husband. However, it rarely ends well, or is even enjoyable.
Last night was another failed attempt. It wasn't a total waste, but it wasn't all that fun, either. We can't seem to find anything to do that we both enjoy in the time frame we have to fill. The sitter gets to our house at 7:30 and we have to drive 30 minutes into town, and be leave town by 11 PM or so. So, that leaves us with * PM-11 PM for eating and whatever we decide to do. That's roughly 3 hrs. The issue is filling those hours, My husband doesn't drink, and I don't like movies. Nothing is open for shopping, and such that late. Museums, and other places are closed. So, unless you want to be in loud, places with loud people there is not much left to do. Parks are okay, but not terribly safe to be sitting in late at night.
My mood is our biggest barrier. I get excited about going out. I look forward to it, but then once we are out around people I just want to go home.
Last night was another failed attempt. It wasn't a total waste, but it wasn't all that fun, either. We can't seem to find anything to do that we both enjoy in the time frame we have to fill. The sitter gets to our house at 7:30 and we have to drive 30 minutes into town, and be leave town by 11 PM or so. So, that leaves us with * PM-11 PM for eating and whatever we decide to do. That's roughly 3 hrs. The issue is filling those hours, My husband doesn't drink, and I don't like movies. Nothing is open for shopping, and such that late. Museums, and other places are closed. So, unless you want to be in loud, places with loud people there is not much left to do. Parks are okay, but not terribly safe to be sitting in late at night.
My mood is our biggest barrier. I get excited about going out. I look forward to it, but then once we are out around people I just want to go home.
Friday, October 11, 2013
Processing Change & Almost Depression Days
Today is going to be one of those days where I need to keep moving, even if I don't want to. I will have to push myself, as I can feel the energy, and optimism slowly creeping out, as darkness, and self-doubt creep in.
These days are processing days. Days that I need to do, as my mind processes all that has happened recently. That is how my brain works. It often downloads in the background as I do other tasks. Kind of hard to explain, but much like a computer updating software. I take in lots of info, but it doesn't quite 'download' right away.
It takes a lot of my energy to try to take in a lot of new changes, and information. This energy has to come from somewhere. For me, it often comes from my mood, and forsakes efficient cognitive processing for daily tasks. Mostly my mood, though.
Days like today are days long with dysthymia. Dull, color faded, melancholy days that are drawn out. I make myself keep moving through it, because if I sit, and think too long that negative voice gets too loud to block out.
These days are processing days. Days that I need to do, as my mind processes all that has happened recently. That is how my brain works. It often downloads in the background as I do other tasks. Kind of hard to explain, but much like a computer updating software. I take in lots of info, but it doesn't quite 'download' right away.
It takes a lot of my energy to try to take in a lot of new changes, and information. This energy has to come from somewhere. For me, it often comes from my mood, and forsakes efficient cognitive processing for daily tasks. Mostly my mood, though.
Days like today are days long with dysthymia. Dull, color faded, melancholy days that are drawn out. I make myself keep moving through it, because if I sit, and think too long that negative voice gets too loud to block out.
Thursday, October 10, 2013
Quick Points for Effective #Autism Advocacy
Since Beans school incident recently I have become all that much more aware of how school improperly handles children with needs they don't understand. I am seeing a re-occurring theme that I find so unsettling.
It's the over-correction, under-supportive, non compassionate, non empathetic way that schools often view, and treat our children.
It seems so common that I find most parents don't even notice it. They just see the way their child is treated as the way it is. It doesn't have to be. Most find what happened to my son to be appalling, but what they don't understand is that if their child is being restrained at any point in their day that could easily be their child.
I have written a lot about behavior supports, and such, and will include those entries at the end of this entry for a reference to those that may not have seen it. As a quick reference, here are some points I'd like people to remember when dealing with the school, and autistic children.
* If your child is struggling in any way with school personnel, and behavior request a Functional Behavior Assessment. Don't think that it would cause too much trouble, or think that just because a certain para is working with your child that they'll be okay. Don't let the school make you feel that they're doing so much that you should be grateful, and not ask for more. That was the biggest mistake I made, by far.
It's the over-correction, under-supportive, non compassionate, non empathetic way that schools often view, and treat our children.
It seems so common that I find most parents don't even notice it. They just see the way their child is treated as the way it is. It doesn't have to be. Most find what happened to my son to be appalling, but what they don't understand is that if their child is being restrained at any point in their day that could easily be their child.
I have written a lot about behavior supports, and such, and will include those entries at the end of this entry for a reference to those that may not have seen it. As a quick reference, here are some points I'd like people to remember when dealing with the school, and autistic children.
* If your child is struggling in any way with school personnel, and behavior request a Functional Behavior Assessment. Don't think that it would cause too much trouble, or think that just because a certain para is working with your child that they'll be okay. Don't let the school make you feel that they're doing so much that you should be grateful, and not ask for more. That was the biggest mistake I made, by far.
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