This is my current thoughts about the latest tragedy in the autism community. I am not meaning any of it sarcastically, or rhetorically.
When one person commits a heinous act of murdering her child we scream "Nail her to the cross!"
But, if someone we have kind feelings. and positive associations with does the very same thing, society gathers to defend said person.
I am trying to understand how the two are different.. How is the action, the result, the crime committed, the pain inflicted different between person 1 and person 2? How did the facts change? Is it just your view that changed? If so, should people be treated differently with different consequences due to how we *feel* about what they've done, and less by the the action itself?
I have sat all day thinking on this issue, and trying to find reasoning in it, but I just can't. I am not a cold callous individual. I don't believe in the concept of good, and evil. I think sometimes when someone does something as unthinkable as trying to kill their child there are mitigating factors. I'm not an unreasonable person. As a matter fact, I'm a very logical person and today's reaction from the autism community to the tragic news of a mother trying to harm her child is not making sense in my head. If a stranger harms another being is it still not the same amount of harm being inflicted if it is your best friend doing it? Does the harm amount to less if it's a familiar person? If the harm is the same, then why should punishment be any different? Why does one scenario have almost all of the autism community saying in unison that lack of services is never a reason to kill your child, but today that is different? This case is different, because...?
This isn't me talking about disability rights, or who could have, or should have done what. This is me trying to make sense of the social concept of empathizing with a murderer/attempted murderer, because this person evokes familiar feelings of love, and care. I am not as angry as I am confused. How I feel about the action of the mother in this case is another post entirely. For now, I am lost in what appears to be a social custom that I cannot wrap my head around. Others are free to hold their own opinions. I'm just trying to understand them.
*Please keep comments respectful, and read this before you blame my autism for not understanding your POV. Thank you.
Thursday, September 5, 2013
Wednesday, September 4, 2013
#Autism Mom Mcjudgypants
This is one of those posts. If you're a writer you know which kind I mean. Those posts where you begin, and erase, and begin again. You feel the words, but they remain elusive, just out of reach..... You know what you want to say, but can never manage to really convey it. The words you write don't do your thoughts justice, so you erase them, and stare at a blank page, and blinking cursor, until it's time to do something else. This has gone on for months with this post.
I think I have touched on the issue quite a bit about parenting, kindness, and what we can gain from not being so judgmental. I talk about it quite a bit on my page, too. I know it's not a novel concept, yet I want to bring this topic up again in the context of special needs parents speaking to other special needs parents. (Sorry, I don't use person first language).
What does this interaction usually look like?-You may ask.
Well, it usually goes something like this:
Scenario One:
Usually, a topic is brought up by parent 1. Parent 1 may be asking for help, or may just have mentioned a certain topic of discussion, but either way parent 2 has heard, and has some advice to offer. They offer it, even if it's completely not useful to parent 1. If they are pushy, they will insist that it works, and ask a bunch of questions about why it won't work. Now, this is where I get flustered. Usually, I can just thank the advice giver, and be on my way, but if they are insistent, then that is much harder. I am not good with being evasive. I always respond with long detailed answers that will usually make parent 2 try to come up with reasons why their way can work despite all of those things.
With this scenario I feel kind of defensive, and almost like I am being attacked. I feel like it is obvious from what they are telling me that my child's autism is not the same as their child's.
I think I have touched on the issue quite a bit about parenting, kindness, and what we can gain from not being so judgmental. I talk about it quite a bit on my page, too. I know it's not a novel concept, yet I want to bring this topic up again in the context of special needs parents speaking to other special needs parents. (Sorry, I don't use person first language).
What does this interaction usually look like?-You may ask.
Well, it usually goes something like this:
Scenario One:
Usually, a topic is brought up by parent 1. Parent 1 may be asking for help, or may just have mentioned a certain topic of discussion, but either way parent 2 has heard, and has some advice to offer. They offer it, even if it's completely not useful to parent 1. If they are pushy, they will insist that it works, and ask a bunch of questions about why it won't work. Now, this is where I get flustered. Usually, I can just thank the advice giver, and be on my way, but if they are insistent, then that is much harder. I am not good with being evasive. I always respond with long detailed answers that will usually make parent 2 try to come up with reasons why their way can work despite all of those things.
With this scenario I feel kind of defensive, and almost like I am being attacked. I feel like it is obvious from what they are telling me that my child's autism is not the same as their child's.
Monday, August 26, 2013
#Autistic Know-it-all, or Could it be #Anxiety?
On my Inner Aspie page I spoke of a little personal challenge to not correct my husband, or critique anything he does for a whole entire week. I made it about 24 hours before I blurted out "That's wrong!!!" when we were making the bed, and he was going to put the blankets in the wrong order. I tried to slow my thoughts down, and think of another way to say it, but I got so anxious. In the afterthought of it all I realize that something so small as the blankets being in the wrong order shouldn't feel so nerve-wracking. I wish it wasn't met in my mind with such obsessional urgency that I feel the energy shoot from my stomach, up through my chest, down my arm, and out my fingertips in a flappy expression of overwhelm. However, it does.
In my mind at that moment it feels like the world is collapsing. My blankets won't feel right while I sleep. They'll probably not stay on the bed right. The satin fabric one is too slippery. It will slide off in the middle of the night, and I will be cold, then I will have to get it. Then, I will be tired from fixing blankets all night. Not to mention what it will do to the color scheme of my room! They won't match like that, and then my room will look dark, and dark shadowy room hurt my eyes, and , and, and,....
That is how anxiety works in my head. I'm not trying to be critical of others. I'm trying to control my world so that I can feel comfortable.
In my mind at that moment it feels like the world is collapsing. My blankets won't feel right while I sleep. They'll probably not stay on the bed right. The satin fabric one is too slippery. It will slide off in the middle of the night, and I will be cold, then I will have to get it. Then, I will be tired from fixing blankets all night. Not to mention what it will do to the color scheme of my room! They won't match like that, and then my room will look dark, and dark shadowy room hurt my eyes, and , and, and,....
That is how anxiety works in my head. I'm not trying to be critical of others. I'm trying to control my world so that I can feel comfortable.
Friday, August 23, 2013
The Hateful Letter, #Narcissism, and #Bullies
I have been asked by more than one person to do a blog post on my opinion about the letter that was anonymously written and delivered to a Canadian family last weekend. I have been reluctant to do so for a few reasons. None of which are popular with the autism community, so I tend to stay out of these conflicts. I wish I could respond like everyone else, and have an emotional reaction that outweighs my logic on these sorts of events, but I don't. I've been a lot of places in my life, and seen a lot of things. More so than the average person in respects to places that most would call unpleasant, dysfunctional, and dangerous. It's these experiences that have left me with a realistic view of people. Some people are not nice. Some are sometimes. Most are most of the time, and a small fraction of people are so dark that they are devoid of any human conscience at all.
Friday, August 16, 2013
Understanding the Why When Teaching Autistic Children
I have seen a theme of discussion here lately about "pushing" autistic kids. From Temple Grandin's speeches to autism pages, and blogs that I read. I have posted, and spoken about it a lot on my own personal page, even going so far as to tag educators that work with my son. I somehow feel they probably don't appreciate that. Their knowledge comes from classroom teachers, and textbooks, which is fine. There is nothing wrong with that, but the picture is not complete without the perspective of people that are on the spectrum weighing in on the subject. After all, we once were the kids they are teaching now.
I have argued in real time with some of the people that work with my sons about the idea of pushing. What it means, what it doesn't, and when it should occur, if ever. I still don't think I have made myself clear, or come to any agreement so far with many.
I think part of the issue is what does pushing really mean? Does that mean 40 hours of ABA? Does it mean constant repetition, and hand over hand? Does it mean do this, and get this? This is where it gets sticky, because what seems like pushing to one person isn't to another. We're all different in how we interpret things.
I have argued in real time with some of the people that work with my sons about the idea of pushing. What it means, what it doesn't, and when it should occur, if ever. I still don't think I have made myself clear, or come to any agreement so far with many.
I think part of the issue is what does pushing really mean? Does that mean 40 hours of ABA? Does it mean constant repetition, and hand over hand? Does it mean do this, and get this? This is where it gets sticky, because what seems like pushing to one person isn't to another. We're all different in how we interpret things.
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