I know there is a TON of stuff out there about how us autistics really do have empathy, and all that. I don't have a long windy argument to support that argument.
Instead, what I have is the photo below.
The worksheet that is pictured there is one that I filled out when I was in 4th grade. As I have mentioned before, I have a formal diagnosis of Asperger Syndrome, yet even as a young 10 year old child I held very strong values, and ethics about helping my neighbor.
I set the value of wanting to help others above fame, admiration, and power. This was not the outcome of sophisticated behavior, or social skills training. These things did not exist for me people like me back then. I wanted to help others, because that is who I am, and what I am naturally driven to do. I didn't need to be coached to have a strong need to treat others with kindness. I recognized their humanity as important, and I wanted to lift the well being of everyone up. Sometimes, my way of going about this may have needed tweaking, and others I might have missed the mark, but empathy was always there. I have always cared, and extended efforts to help others anytime I had the opportunity.
What examples do you have the support autism and altruism coexisting within the same person at the same time naturally?
Also, as a side talking point..... Do you think that we should have more worksheets like this one in school nowadays? It's been about 25 yrs since this was filled out by my class. I wonder if these types of activities get kids thinking about values, and behaviors further supporting thinking about how they treat others. I haven't ever seen my kids bring home worksheets that support this type of thinking exercises.
Sunday, June 1, 2014
Monday, May 12, 2014
Thoughts From the Unlovable Alien
The air outside is cloudy, cool and in stark contrast to the hot, windy days we've had recently. I hear the rain drop on the windows, and roof much like the tears in my lap. It's one of those days. If you're looking for warm , and fuzzy... this post isn't going to fulfill that.
It's happened again. I have been lied to. Betrayed, and forsaken.
At first there was anger, then the inevitable piecing out of what would be the logical way to handle the situation. I figured that out, and decided it was what was to be done. For a few days this was okay. Then that little voice inside of me got harder and harder to silence. It's the sound of my inner child, or whatever you want to call it. She began as an essence, but moved to a whisper. I escape her by daydreaming of times where things were better. There's no better way to soothe a current hurt than to get nostalgic. Suddenly, I am 15 again, and the possibilities are endless. I can remember when I felt I was something, and that I mattered. I don't search for a specific memory as much as how specific feeling. If I can at least artificially feel loved, and important than I can figure out how to get through another day. If I can convince myself that I am an okay person then I can cope, just one more day. That usually works for small bouts of loneliness, or rejections, but big ones? I just can't escape inside of my own head enough to alleviate that much sadness.
So, the little voice grows louder. Her mumbles begin to get more audible. "....doesn't like you..." and "..Your fault"... and more cynical statements begin surfacing. With it are the images of memories, and times long repressed to the back of my mind.
I get busy. I try to drown her out with tasks. I really don't have time for all this negativity. I have stuff to do! My house gets cleaner, as I fall apart inside. Perfection is soothing to me, as I strive to have the best of everything. Obsessive would be a good word to describe this phase of mental deterioration. To others it looks like I am just getting things done. I am. Sometimes, this motivation is all I need to snap back to feeling good again. However, if it isn't.... it is pretty much the last stop on the coping train.
If not, then what?
It's happened again. I have been lied to. Betrayed, and forsaken.
At first there was anger, then the inevitable piecing out of what would be the logical way to handle the situation. I figured that out, and decided it was what was to be done. For a few days this was okay. Then that little voice inside of me got harder and harder to silence. It's the sound of my inner child, or whatever you want to call it. She began as an essence, but moved to a whisper. I escape her by daydreaming of times where things were better. There's no better way to soothe a current hurt than to get nostalgic. Suddenly, I am 15 again, and the possibilities are endless. I can remember when I felt I was something, and that I mattered. I don't search for a specific memory as much as how specific feeling. If I can at least artificially feel loved, and important than I can figure out how to get through another day. If I can convince myself that I am an okay person then I can cope, just one more day. That usually works for small bouts of loneliness, or rejections, but big ones? I just can't escape inside of my own head enough to alleviate that much sadness.
So, the little voice grows louder. Her mumbles begin to get more audible. "....doesn't like you..." and "..Your fault"... and more cynical statements begin surfacing. With it are the images of memories, and times long repressed to the back of my mind.
I get busy. I try to drown her out with tasks. I really don't have time for all this negativity. I have stuff to do! My house gets cleaner, as I fall apart inside. Perfection is soothing to me, as I strive to have the best of everything. Obsessive would be a good word to describe this phase of mental deterioration. To others it looks like I am just getting things done. I am. Sometimes, this motivation is all I need to snap back to feeling good again. However, if it isn't.... it is pretty much the last stop on the coping train.
If not, then what?
Tuesday, April 29, 2014
Give Me a Sign- Expressions of PosAutivity: #AutismPositivity2014
I have been thinking about doing a Autism Positivity blog post entry for a few days. I kept drawing a blank on what to write about, so I was unsure if I would participate. Then, I read last night that this year's suggested theme is communication, and expression. This new info reminded me of a post that I have been thinking about writing for awhile. I hesitated, because I don't know if many will think it's positive. I don't know how it will be received by others in the autism community, especially those that don't typically follow my blog who don't know our story. Then, I remembered how much I tend to care about people who don't know my story who want to lend judgment on how I should express myself. I have no cares to give about those opinions. While speaking about the themes being self expression,and communication style of people with autism I can safely say this blog is how I express so much of my inner self. The people that follow me here know me more authentically than anyone I know in real life who has never read my writing (save maybe a couple people), so I do myself a disservice when I censor my writing to fit what what I think others want to read.
As most of you know I have a 10 year old profoundly autistic son named Beans. He is nonverbal. For years, the school, and private speech tried to teach him to use Picture Communication Symbols, or PECs for short. We tried the symbols, the actual pictures, and even objects. We tried devices, and differing methods all the while Beans became more, and more irate while virtually not improving in any of the methods, at all. As we all know, behavior is communication. It didn't take me very long to decipher what he was upset about. Life is confusing, and overwhelming for him as it is, but imagine being asked to participate in an activity for 7 years that made no sense to you, everyday. You were asked to point at random pictures, and not allowed to do anything until you did. This activity would follow you from eating to playing. Always that book of pictures. I often wondered what they looked like to him. Were they just colorful pieces of laminated paper? How did he feel when he saw that book come out day after day? He melted down more frequently, and his communication had not improved any measurable amount in that seven years. We had some of the best service providers in the country teaching him to use the book in private speech, and public school. No, to little improvement was a clear indication this was not working for him. The meltdowns from frustration was a clear sign to me that he does not learn this way.
I didn't know the struggle that lay ahead of me in getting professionals on board to use another method. It was such a shocking, and sobering experience to me to be completely shot down when
As most of you know I have a 10 year old profoundly autistic son named Beans. He is nonverbal. For years, the school, and private speech tried to teach him to use Picture Communication Symbols, or PECs for short. We tried the symbols, the actual pictures, and even objects. We tried devices, and differing methods all the while Beans became more, and more irate while virtually not improving in any of the methods, at all. As we all know, behavior is communication. It didn't take me very long to decipher what he was upset about. Life is confusing, and overwhelming for him as it is, but imagine being asked to participate in an activity for 7 years that made no sense to you, everyday. You were asked to point at random pictures, and not allowed to do anything until you did. This activity would follow you from eating to playing. Always that book of pictures. I often wondered what they looked like to him. Were they just colorful pieces of laminated paper? How did he feel when he saw that book come out day after day? He melted down more frequently, and his communication had not improved any measurable amount in that seven years. We had some of the best service providers in the country teaching him to use the book in private speech, and public school. No, to little improvement was a clear indication this was not working for him. The meltdowns from frustration was a clear sign to me that he does not learn this way.
I didn't know the struggle that lay ahead of me in getting professionals on board to use another method. It was such a shocking, and sobering experience to me to be completely shot down when
Tuesday, April 22, 2014
Does Your Scalp Tingle Sometimes? Unraveling the ASMR mystery.
A few months ago I shared a link on my Facebook page about that special tingly feeling that one gets at certain times. It usually starts in the scalp, and moves down the body in response to specific stimuli. It's extremely pleasant. It reminds me of the warm, happy feeling I get from muscle relaxers times 100. Many of my friends responded to the post with a "I have that, too!" Most didn't know that it had a name. In fact it does- Autonomous Sensory Meridian Response I didn't think much of it at the time. I did put it on my mental list of 'things to research later' which is already years long.
Fast forward to a couple months ago when I was composing the blog post about General Anxiety Disorder. One of the things that I listed to help was meditation videos. I went to youtube to find some of the best examples of these that I could find for me readers, and BAM. I stumbled upon ASMR videos. This happy sensation that I get when I watch certain people talk, or hear certain noises, and most especially when I get a massage was easily accessible via hundreds (if not thousands) of videos online.
There is not much known about ASMR, and why it affects people the way it does. Even more surprising than that is not everybody can feel it. I always assumed everyone was able to have that sensation just like I was. There is still a lot of research being done about ASMR. Some say they're still trying to validate it, because scientifically it's still not really been verified. Much like synesthesia was years ago, there are still some people that deny it exists. I really am not sure how one verifies a feeling. If a ton of people report a physical sensation then I would have to say it does indeed exist. We're not assuming paranormal explanations for this phenomenon. It is simply like being ticklish. Either you are, or you're not. Either your nervous system is capable of this phenomenon, or it isn't. There is nothing hokey about it.
So what is ASMR specifically?
Fast forward to a couple months ago when I was composing the blog post about General Anxiety Disorder. One of the things that I listed to help was meditation videos. I went to youtube to find some of the best examples of these that I could find for me readers, and BAM. I stumbled upon ASMR videos. This happy sensation that I get when I watch certain people talk, or hear certain noises, and most especially when I get a massage was easily accessible via hundreds (if not thousands) of videos online.
There is not much known about ASMR, and why it affects people the way it does. Even more surprising than that is not everybody can feel it. I always assumed everyone was able to have that sensation just like I was. There is still a lot of research being done about ASMR. Some say they're still trying to validate it, because scientifically it's still not really been verified. Much like synesthesia was years ago, there are still some people that deny it exists. I really am not sure how one verifies a feeling. If a ton of people report a physical sensation then I would have to say it does indeed exist. We're not assuming paranormal explanations for this phenomenon. It is simply like being ticklish. Either you are, or you're not. Either your nervous system is capable of this phenomenon, or it isn't. There is nothing hokey about it.
So what is ASMR specifically?
Wednesday, April 16, 2014
The Miracle That Didn't Happen
Flipping through my FB, and Twitter feed I can see an array of autism related articles, and blogs. Just looking at their titles one can see a gleam of inspiration, and awe-ness that many of the pieces contain within. The feelings of warmth, and love. I think those pieces have their place, but sometimes the sweetness gets to be too much. I often feel like I am watching the end of a South Park episode where one of the characters always turns, and says "You know what? I learned something today." then continues to speak about the important life lesson they learned in that episode.
Why does that bother me? The short answer to that question is 'bother' would be a strong word. I certainly don't feel like I get to tell other people what they should write about. I'm not about to censor other people's words, because my experiences don't match theirs.
It just feels... awkward, or maybe too artificial in some ways to always be a parent of kids on the spectrum whose experiences aren't nearly that enlightened.
Why does that bother me? The short answer to that question is 'bother' would be a strong word. I certainly don't feel like I get to tell other people what they should write about. I'm not about to censor other people's words, because my experiences don't match theirs.
It just feels... awkward, or maybe too artificial in some ways to always be a parent of kids on the spectrum whose experiences aren't nearly that enlightened.
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