Saturday, January 17, 2015

Being a Night Person in a Morning Person Society

As long as I can remember there has always been a great deal of emphasis on being a being an early riser. In Western culture it's considered a high virtue to be busy early in the morning. We even have so many sayings that express this.

The early bird catches the worm.
Up and at 'em.
First thing in the morning.
Top of the morning.
Rise and shine..

There's many more, but those are the ones that come to mind at the moment.

It's considered an act of productivity, and enthusiasm to be up early getting a jump start on one's day. So, what if you're not a morning person? Does that mean you're lazy, and unproductive? Do you still get things done, or are you missing out as the daylight burns away while you snooze? Is there such a thing as a morning person?

Many of those questions aren't so easy to answer. Many of them a lot of you may have never even thought about fully. I think it's just a given that school, and work starts at a certain time, and we have to participate in those things, so we do.

Saturday, December 20, 2014

Beyond Behavioral- The necessity of medical tests for ANY behavioral changes in a nonverbal person

I may have briefly mentioned some of Beans violent meltdowns lately. I tend not to share a lot of the personal day to day happenings that I think may reflect negatively on my kids. Not because I think one should never talk about autism in a negative light, but because I feel there needs to be a limit to how much of my children's stories I share with the public.

Anyway, back to my point... He has been having pretty severe meltdowns several times a day that have been leaving the whole house exhausted. Obviously, the meds he was taking were no longer helping, so I took him off of them. His mood improved overall, but the meltdowns did not cease, even a little.

When I took him to the doctor about it the first question was if I wanted to try more meds.

That is never the right first question when dealing with a nonverbal autistic child. Really, any autistic child, but especially not one who is extremely limited in communication.

I asked if his lab work we had done several days ago was back. It was, but not even really considered. I had to ask for the lab to be done, and for it to be read.

Turned out his blood sugar levels were a little low, and his thyroid was high.

Friday, December 5, 2014

I'm Too Old For....

Today is my birthday. This last week I have been thinking back on my life, and how things are. I have a hard time believing that I am 36. It doesn't feel possible. When I was younger I always felt so mature for my age, but now as I age I feel my internal clock is moving in reverse. I feel like I am still in my twenties, and the 90's were just 10 years ago.

I was thinking about the things I like about my life, and the winding path that has taken me to where I am. I was also thinking about the things I am tired of, and done with. Things that I said I wanted to change a long time ago, but realized I never bothered with.  I began to compile a mental list in my mind about these things. Things I felt I was too old for, or done with.

I'm too old to keep being the victim. I know this one seems to be a bit strange to say, but hear me out. We've all had bad things happen to us. A lot of the things that happen to us when young is not our fault. We have no say in what kind of family we're born into. We have no say over a lot of the most painful of life's circumstances. They happen to us no matter who we are. We're all going to experience the loss of a loved one at some point in our lives, for example. However, there are so many things we do have control over. These are the situations that I am talking about when I say that I am too old to keep playing the part of the victim. I think what often happens is that many of us that came from dysfunctional families where we were not accepted, or cared for tend to subconsciously seek that pattern in other relationships. This is not to say that we want to keep feeling bad, but we are used to it. It's comfortable. It's the role we know, so we play it. I know this has been the case for me. I don't like being rejected, or never having my needs considered by others, yet it keeps happening in so many of my relationships. Somehow, I keep seeking this role out, hating it all the way.

I'm done with it.

I need to actively seek to better my life, and not blame others for my own problems. If I don't have enough help, or enough affection, or enough anything I need to problem solve on how to resolve this. I can't keep just expecting others to meet my needs without me being active in putting the process in place.

With that being said.....

I'm too old to be giving myself away. This one goes with the victim role I was talking about above.  I'm getting too old to keep getting into the role of people pleaser. I am getting too old to waste time on people that are only there to take advantage of me. I can't keep being taken by the same type of people, and expect my life to not feel drained.

Tuesday, November 25, 2014

The #Ferguson Decision- My Thoughts

Earlier today I posted one of my opinions about the Ferguson decision last night on my facebook page for my blog. To say that it was not well received would be an understatement. I ended up being so flummoxed, and out of time to properly explain my thoughts without a litany of swear words, and ranting, so I shut the page down for a couple hours. This was just my way of pausing the whole thing so I could think for a minute, and gain my emotional control. I needed to have a moment to write, and I have not had that time until now, so I am. I put my page back up, but have not been on it, so I can imagine it is quite possible that things have gotten worse, and I have lost 10 more members.

I thought about just deleting the thread that caused the issue to begin with. I thought about trying to clarify what I am trying to say on that thread. One of the reasons I am so mad is not at the people that disagree. I know the critics are there. I am more upset at the people that agree, but have opted to remain silent withholding comment, and even likes so as not to enter the conflict. I see them saying similar things on their private (read safe) pages, but will not engage in a wider arena due to being too afraid to get attacked.

I have opted not to go the safe route, so it's time for me to put on my big girl undies, and deal. This post is where I am going to offer my opinions about the Ferguson decision. You are welcome to address these points, and bring up any of your own (provided you're being respectful, and remaining on topic) in the comments section. I will not be returning to the thread that caused the issue, and commenting further there. I feel what I was trying to say has been twisted around, and that was a few hours ago. I can't imagine how out of hand it's gotten since.

First of all, I want to clear one thing up that seems to be so misunderstood. I am not angry that a cop 'got away with murder'. I am angry

Wednesday, November 19, 2014

Uneven- How my brain works

Last Wednesday I went before our state board of education to speak along with our state's disability rights center about the current lack of enforceable regulations regarding seclusion, and restraint complaints in our state. There are regulations in place, but no real way for the board to enforce them if a parent files a complaint. The complaint process is really a meaningless gesture the way it's all set up at the moment. I strongly feel that needs to change.

As passionate as I am about having strong laws that protect vulnerable children I almost as terrified of public speaking. I don't like being the center of attention, and I don't like speaking in front of groups of people. This combined with news cameras, and closed circuit television really was my idea of anxiety hell. It was so many of my fears rolled into one event.

I sat there listening until it was my turn. The people that went before me were better at public speaking, but not necessarily in getting to a point that makes sense, and is action oriented. You only have three minutes to speak. One needs to make their point quickly, buy effectively, as well. There needs to be a directive at the end of what, and or how you'd like to see your idea implemented into public education.

I heard some good ideas from educators, and parents. One in particular spoke about the need for movement breaks being implemented into the classroom environment, Those of us familiar with autism, and sensory processing disorder call these sensory breaks. All kids (and arguably adults, as well) need these breaks. It's important to our whole mind, and body system to give our bodies the opportunity to rebalance after sitting for a prolonged time. Children especially are not built for long periods of inactivity. I loved her idea, and that she did a demonstration. What I waited for, and didn't hear was how to implement this activity in every class period. What I waited for, and didn't hear was how there have been numerous studies recently about the need for more movement being incorporated in children's school days, or even what solutions she is specifically asking the board to implement.

I noticed that many were pretty good at speaking while looking at the board members, and really just having fluid body language that I didn't have. It was taking all I had to read without losing my place. I also thought I might throw up. My voice shook, but the words came out as I wrote them. I was told I did a great job, and my testimony seemed to really make a big impression. I was approached by a few of the board members who had questions, and who wanted to get my contact info.

It occurred to me as I was on my way home what impression I left on all those people in that room. A willowy,  thin, well dressed woman who was was well spoken, and capable. That was something, wasn't it? I'd never thought of myself that way, and never thought others did, but in this moment I saw a glimpse of what I can look like in a small sliver of time to others. Strong, and educated. Privileged, even. The only way I could get through the entire ordeal was to tell myself that I was just as good as anyone else there. I had just as much right to speak, and be heard as anyone. That was a novel thought to me. It truly was. I repeated it over, and over in my head as I awaited my turn to speak until I almost believed it.

What they couldn't know was that I could never have gone if my husband hadn't driven me from two hours away. Driving on the interstate to unfamiliar places is not something I can do. It may as well be located in outer space if it were left to me to get there from far away. It's not laziness, or just anxiety. It really is beyond my capability to drive that far away, and find my way around without getting lost, or so completely overwhelmed that I couldn't function. All the little steps of traveling seem so hard for me. I feel like a child. These are the times that I know I am not capable, and am not strong.

But, you know what? This is a big part of what autism is.