Sunday, May 19, 2013

Deeply Emotional & #Autistic- how my brain processes emotions

The other day when I was in an IEP meeting the assisted communication specialist was describing a new communication book that we would be using for Beans.  She described how we would point at the pictures in it to talk to him, and not just use it for him to request from us. In other words, it wouldn't really be PECs, and it wouldn't just be a one way conversation. Most of the people at the table were confused at what this meant, why it was this way, or how to use it.  The communication specialist was trying to explain it the best she could in her technical language as it was taught to her. She was over complicating it, and missing the mark. That's when I stepped in.

I explained to them that many people on the autism spectrum never think in words, and don't interpret the world in language. Some of us can learn it, and some of us can't.  Sometimes we think in pictures, sensations, or in a way that I can only describe as intuition, because there is no word for that. When we speak to my severely ASD son with words he most likely has to translate this to pictures, or to whatever way his brain interprets things.  On a good day, some of the message might make it through, depending on how familiar he is with those words in that order. On a bad day, or day where he might be low on energy none of the message will make it through.  It will be a garbled mess.  So, when we point at the pictures to speak to him, there is a conversation going on. He is not just using his book to ask for cake, or to go swimming. He is able to 'hear' us. I might tell him that I am wearing green today, and point at the color green. Or maybe, I'd like to tell him that I think it's hot outside. So many choices, but the idea is to build on receptive language in a way that he might grasp it better.

That got me to thinking about the subject of how I interpret the world,

Sunday, May 5, 2013

Be specific- How my autistic brain thrives on rules.

I used to spend hours arranging my barbies, and stuffed toys in rows.  I would take my line down again, and make a new rule for the order, and begin a new line.  The order might be by animal type, alphabetical, color, or even by most favorite to least.  I LOVED playing 'store' and would spend hours arranging all the 'merchandise' in my store.  I even made little price tags, and and sales receipts. I spent 10 times longer setting up my store, than actually playing with it.  I mostly liked playing with my brother, because he had to play my way.  I didn't have so much control over other children.  I wasn't very nice to my brother, and would often smack (I'm embarrassed to admit that!) him when he didn't obey my rules.

Now, I do this with adult things. 

Wednesday, May 1, 2013

#Autism & Self-Acceptance

I posted a pretty long post on my FB page about how I process emotions after I yet again, took something too seriously that my husband had said, and made a bigger deal out of it, than it really was.  This is something that always happens to me.  When I say always, I mean at least a few times a week.  It doesn't help that I have a hubby that I swear has ADHD, and everything is a joke to him.  My autistic brain is literal, and I often feel like he's making fun of me, when he is just interpreting the world in the way his brain is wired.  Anyway, this is what I wrote:

"Emotional regulation issues, and autism/asperger's. I find that I get irritated, and anxious by minor issues often, only to realize later while looking back that the thing that seemed so upsetting, or anxiety provoking really wasn't that big of a deal in the first place. I sometimes am embarrassed about my overreaction to seemingly insignificant occurrences, and the anxiety about how others might view me in light of my meltdown, or the anxiety about it happening again will keep me from trying new things, and socializing, if I let it.

As I have gotten acquainted with ASD, and what it's all about I have become aware of the reasons behind this phenomenon. One big one is weak central coherence (inability to see the bigger picture) and the other two are executive functioning issues, combined with difficulty in detecting, and describing emotional states. It's hard for me to see the bigger picture when I see something that goes wrong in my mind. I lose sight of how to get it back on track, and struggle with understanding how to deal with mounting emotions.

The last, but least of these triggers is, the deep down fear that I am being judged harshly by others, and won't/don't measure up. I think this reason is one that most, on or off the spectrum can relate to, but for those of us that seem to get things wrong so often, self-doubt is often a big obstacle to overcome when trying to regulate our emotions. I can lash out defensively, as if I deep wound has been ripped open, because in some ways, for me it may feel like it has. Learning mindfulness, and lot, and lots of opportunities to learn self-acceptance has helped a lot."
 
Then someone asked a million dollar question: How do/did you learn self-acceptance?  Can you give some examples of that?

Monday, April 15, 2013

How I Experience Empathy

For a couple of years now, I have wanted to write something about autism, and empathy.  I wasn't sure what, though.  I (as usual!) don't fall into the same belief system as anyone else I know of about this subject.  I find most views to be be extreme.

On one side, I see the ones that think we have no empathy, or at least the typical capacity for it.

Then , the other that contends we have too much to the point we're all empaths.

I don't believe either of those to be true for myself, or my boys from what I have experienced, and known of ASD. So, where does that leave me?

Friday, April 12, 2013

Aspie Negativity

This is a stir the pot kinda post.  You've been warned now. If you're not in the mood for thinking about broad issues, then you might not want to keep reading. If you think you can keep an open mind, then keep reading. If comments get out of hand I will have to moderate them.  Please, don't make me do that by leaving nasty comments. Thank You!

There is this thing that I see happen often among autistic people. As with everything, it's not black, and white.  Not every autistic person does this, and NTs can do it, too, but I find it to be a very, very common trait among autistic people.

Basically, it's not seeing the forest for the trees type of thinking. It's the idea that if one tiny thing is wrong (in their eyes) in a vast quantity of right, the wrong is still worth bringing up, and making a big deal about it.